Topic: Hobbies to keep mind off nausea?

Hi I'm currently on xeloda. So up until about a month ago I have been doing ok. Normal side effects acid reflux hands foo, fatigue. Everything was manageable. My scans were good so they gave me a break. That's when everything went downhill. I've been sick in bed all day only recently forcing myself to eat the min I can. Got back up to 96 lbs. my last scans grew because of the break. I just finished an anti biotic. I'm on nabilone,dexamethasone,lorazepam for fear of nausea and anxiety, gravol sometimes works and ondansetron. Plus I'm back on chemo mon I hope it helps again.  Plus I take a patch on my arm for pain. And zopiclone for sleep which doesn't really work in spite of  all these pills I'm only now starting to be able to force food down. I just get so depressed and want to be in bed all the time with my heating pad. Sometimes I just lay crying for hrs. Only today n yesterday I was able for a couple hours to do yoga n jewelry making. What other hobbies do you guys have to keep your mind off stuff.

Knitting is a little hard it comes loose sometimes! And feeling like this makes it hard to concentrate properly. I have Netflix but Canadian Netflix sucks!  And only so many movies you can watch. I used to read before the migraines. I feel like I'm going crazy.

I miss school and my friends. Sometimes they just don't understand and when I cry I feel like m bothering them with my problems. I don't know who to talk to no one understands. Just been so scared.

Re: Hobbies to keep mind off nausea?

I am so sorry you are feeling so poorly. Is your ONC aware of this and if so any advise from the ONC. Have you thought about a 2nd opinion! Sadly you are wasting so much needed energy on so many things gone awry. Some of this could also be the weight loss and not eating. I just spent 2 weeks in the Hospital starving to death from not eating cause of Ulcerated Colitis. Came home a month ago and I cannot began to tell you all the side effects from not eating! I am still weak. I was nauseus just looking at water and could not talk on the phone or I would get dry heaves. I would suggest grazing during the day instead of bigger meals. Try some nutrition drinks but most important your Docs need to be aware of what is going on. Sometimes we DO need our pity party. I feel so bad wish I could help, but I can leave you with a smile. My Mother-in-law umpteen years ago spent a lot of time in the hospital with Leukemia  and I could just sit there so long watching her and NEVER was in to arts or crafts so took up knitting and knit a lovely brown cardigan sweater. I even got both sleeves in. BUT when I went to but the 2 sides together realized I had knit 2 left sides! No more knitting for me.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Hobbies to keep mind off nausea?

I go to symptoms management and they are good they just keep giving me more or different pills and then pills for side effects of the other pills i feel like a junkie! Sometimes I get a couple of hours a day where I get out of bed I actually so I have to force myself to get out and eat something before it comes back. Then I get scared its gonna come back!  Of course it doesn't help being allergic to 90 percent of foods lol. Such a struggle. I'm trying to learn how to make jewelry I hope it goes okay. smile seems easier than knitting. I only know like one stitch lol. The rest come too loose!

Re: Hobbies to keep mind off nausea?

I am so glad to hear you are receiving help for everything that is happening. Don't laugh but I would try something like a girls jewelry kit to start with and if you like it....next things ..diamonds. Oh, oh just got an idea. When you get really good make replicas of famous jewelry! Please keep us update on your progress we really care and if you need to sound off you have the mike!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Hobbies to keep mind off nausea?

Well my friend took it in fashion so she can teach me charm bracelets and pearls if I'm well enough! Yes they are good at trying to help I guess there's only so many pills  that could actually work. And I guess it takes time too.ditto on the small meals I eat out of the littlest bowls. Sometimes I take one whiff and I'm like no thanks lol. Makes u appreciate the times u actually can eat.

Re: Hobbies to keep mind off nausea?

Oh, I know first hand now. It's awful. The strangest thing happened. I had nothing but water for 3 weeks and then I couldn't drink that. I was on Zofran. Anyway, I fell asleep with my door shut tight as the Hospital ws quite noisy at night. It was 9PM. BTW they even put a sign on my door not to wake me up for LABS as they could be drawn in the morning. When I was falling asleep I was thinking I was not coming home and it was time to have the BIG talk with my daughter. This had been coming on since Thanksgiving. About 2AM I woke up and there was no nausea no nothing and I was so hungry. I don't like peanut butter or soda crackers but ate 10 crackers with P.B. on them. Then jello and sherbet. It was a feeling that was so strange when I turned the corner. I like to think it was Teddy helping, who knows but honestly I feel the Humira and Prednisone just kicked in! And yes I have changed GI Docs.
How great that you have a friend who can help you get started. Maybe it will be very cathartic for you, I hope so. I hope you can start eating. According to my GI guy just eat, eat eat, anything you want in small portions.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Hobbies to keep mind off nausea?

Thanks I'm trying to in the beginning I was so scared to throw up and the dry heaving but hopefully the pills start kicking in. Trying to get some ensure or glycerine but all the sure sometimes bothers my other stomach problems. Jello seems to be ok when I'm in the mood. They told me to try ice lol lies too but I'm worried about the sugar. Don't wanna worry about stool problems too. Lol those just come and go

Re: Hobbies to keep mind off nausea?

Thanks for all your help its good to have people who talk to who understand, it feels like everybody just feels sorry n u don't wanna worry them. Or just don't care and only care about their life problems.

9 (edited by marions Thu, 28 Mar 2013 04:09:32)

Re: Hobbies to keep mind off nausea?

lost-soul....it is difficult to control nausea with this disease.  Don't hesitate from contacting your physician and if need to have yourself admitted to the hospital for treatment. You might also want to ask about biliary bypass procedure, whether it is applicable or recommended by the physician.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Hobbies to keep mind off nausea?

Thanks ill research it. I have a stent so I'm not sure if I will be able to get it done. They are even scared of changing my stent because of all the tumors. So far the blood work shows its been okay. At least the back pain went away. Well it comes at night sometimes. Every time I try to go to the hospital when I'm in pain crying they just give me pain killers and send me home. But those wear off eventually. I always ask to go when I'm that bad but my parents know they just send me home. Heating pads r my best friend right now. And my bed lol

Re: Hobbies to keep mind off nausea?

I'm so sorry you're suffering so much! I'm sure your friends don't mind listening and supporting you even if they don't fully understand all you're going through. Glad you sought support here too. Sending prayers and hopeful thoughts for your comfort and health. Willow

Willow

Re: Hobbies to keep mind off nausea?

I love books on tape and listen to them in the car and when I'm in my lab sitting at my microscope!  I put audio books on my iphone, ipad and ipod. 
Our library  has tons of books on CD and tapes and they are free to check out.  I love being read to!!

Sending hugs and prayers that things get better and easier to deal with!!

Hugs!
Pam

My Mom lost her one year battle with CC on April 3, 2009.

"A prognosis is simply an audit of how truly precious each day is.  Live each day to the maximum, celebrate what was, and what is - Don't spend your life looking forward to what will or might be." .... words of wisdom from my beloved son on hearing of his grandmother's CC prognosis.

13 (edited by lost_soul84 Fri, 29 Mar 2013 21:38:58)

Re: Hobbies to keep mind off nausea?

Thank you so much for your kind comments and suggestions! I wish I knew if the sickness was coming from chemo or the cancer itself! Hoping my next scan goes okay. *Hugs*