Topic: New member - advice appreciated
I have been reading the posts the last couple of weeks and would like to thank everybody as it has been an enormous support
My father has CC. He lives in Melbourne, Australia. He is a 67 year old very fit man whom was orginally diagnosed in 2011 with a small tumour at the ampulla of Vater. He had a wide local exicision with very close monitoring via ERCP. Unfortunately tumour came back in the bile duct and he had a Whipples in march 2012. He had clear margins and his lymph were negative hence his onoclogist stated he didnt need any chemotherapy (I asked for two opinions... am wondering if I should have done more?)
Unfortunately his CA 19-9 (which was normal before) started going up (45 in Dec where they werent sure of significance, then 41 in Jan and now in March 98). His CT scan in March revealed enlarged abdominal lymph nodes compared to scan performed January. His PET scan then revelaed increased uptake in some of lymph nodes (not all of the enlarged lymph nodes) seen in CT scan however also in liver (however his CT scan showed no tumour in liver).
Surgeon has said he is not a resection candidate as it is in his lymph nodes. Oncologist has said we cant use radiotherapy and standard in Gem/Cisplatin which seems a bit backward to me (not using a biological I mean)
We are waiting for his KRAS testing to see if he can take part in a clinical trial in Melbourne (only gets in if wild type) with Gem/Cisplatin and panitumumab.
This is not very common in Austalia and I feel that maybe the US medics have more experience (and are maybe more aggressive?) in treating this disease.
My dad really wishes to fight this (the Oncologists discussion of there is no cure, treatment is only palliative and hence you can decide to wait to be treated seeing he has no symptoms was hard for him to digest).
I am wondering if anyone has experience with Gem/Cisplatin and panitumumab on this site?
I am also thinking of getting a second opinion in the US and am wondering if anyone can suggest the key expert in the US (I have read about Dr Sun in Pennsylvania)
Anything else people can suggest I would be most grateful (i note that some people are taking Celebrex (?? what dose) and also Vitamin D (? what do oncologist think of Vit D?)