Topic: Clinical trial testing Tuesday

After hours on the phone with the stupid insurance company, everything is a go for tomorrow... CT scan, blood and urine tests, genetic mapping and who knows what else? I hope to know in a couple of days if I'm cleared for continuing to try to get into the study... We will set up the biopsy and give it a go! I can't believe it's actually going to happen!
I finally realized God has been in control all this time. I'm in His hands. I am so sure this is where I'm supposed to be that I have not taken a Xanax or a sleeping pill in days.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Clinical trial testing Tuesday

Kris, FABULOUS! Like I wrote the other day, God has a plan and he doesn't have to get our advise or permission. Its like what I had to go through to get back to the right GI Doctor. You had to go round and about to get to the right place. THe best of luck tomorrow!!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Clinical trial testing Tuesday

Grrrrrrrrrr to hours on the phone with insurance companies Kris! But glad to hear that everything is a go for today! Hope all the tests go in your favour and fingers are crossed that you get on the trial. Load of positive vibes coming your way, go Kris!!!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Clinical trial testing Tuesday

More hours on the phone again!! GRRRRRRR is right Gavin! Denied again, then approved again! My case worker is another pit bull. Shes the only good thing about AETNA. So much for being off Xanax tho!
And anyone who thinks this is US based health care-- I spoke to a senior supervisor who (it turns out) is in Manila! WTF??? AETNA, gotta be glad I met ya! NOT!!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Clinical trial testing Tuesday

Major GRRRRRRRRRRRRRRRRRR to more hours on the phone Kris!!!! Keep kicking their butt's Kris!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Clinical trial testing Tuesday

Amazing how much time it takes to manage insurance and medical appts! So glad all is going ahead w clinical trial and I'm keeping my fingers crossed for you to qualify for this, Kris! Meanwhile, keep on doing those things that bring you joy!
Willow

Willow

Re: Clinical trial testing Tuesday

Great blood work! WBC and RBC are barely low. Platelets are normal, bilirubin is 0.1 (normal 0-0.4 at FCCC) and the best news!! CA 19-9 levels 48.8 (normal at FCCC 0-37)!!!!!!
Of course, the nurse says they might be TOO good. If the lymph node doesn't light up the ct scan I can't be accepted into the clinical trial. But if the ct scan shows no affected node, then maybe it WASN'T cancer!
I'm on such a high if I wasn't so tired I'd be jumping for joy! Now to wait to see the results of the ct scan tomorrow or Wed...... Not gonna stress about it....

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Clinical trial testing Tuesday

WOW, Kris, I can't wait to hear the rest of this story. Since you are so tired, don't jump for joy let JOY jump for you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Clinical trial testing Tuesday

Keep us posted Kris!  Praying for good news.

Take care,

Susie

Re: Clinical trial testing Tuesday

I have been approved for the clinical trial! Biopsy is scheduled for next week and I start the trial the following Monday, the 22nd. I can't wait to see how well this new drug works!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Clinical trial testing Tuesday

Kris, I answered your other email today but was wondering when is the Biopsy, you only said next week.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Clinical trial testing Tuesday

Kris,
Best of luck to you with the trial!!
Please keep us posted.

Jeeyoung

Re: Clinical trial testing Tuesday

Kris,

From your posts you seem like a courageous and amazing woman.

Best of luck with the trial

Rain

Re: Clinical trial testing Tuesday

The biopsy is Wed. I have to be there at 8am..... And a poor friend of mine needs to get up and take me! Good to have friends!
The only thing I am worried about is the biopsy, even tho the drug really isn't proven. But I'm trying to give it all up to God. (I just forget sometimes!)

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Clinical trial testing Tuesday

Kris, you may forget sometimes but God doesn't and if he did I am sure Teddy would remind him!

P.S. Rain already knows how courageous you are what she doesn't know yet is what a crazy lady you are!  LOL  Wishing you the very best on Wednesday! Sending you a ton of prayers and love.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Clinical trial testing Tuesday

Kris.... participants in Part B, a tumor tissue sample is mandatory for biomarker analysis - that's you, Kris.  Wow...my fingers are crossed and so is everything else.  Thinking of you and sending tons of good wishes your way.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Clinical trial testing Tuesday

Hi Kris,

Good luck on Wednesday - may all go well and you'll be on to the trial!!!  My prayers and thoughts are with you.  As for God, we all forget sometimes - but thankfully He understands and alway stands by AND with us!!!

Peace,
Mary