Re: Lauren's Surgery

Havnt had a chance to login lately but have been thinking of you both. so glad to hear the surgey went well and am praying for her speedy recovery. Lauren is such an inspiration to me and she is so blessed to have such an amazing Mom!!!! God Bless

Re: Lauren's Surgery

Pam,

I've been away and just read the posts.  What wonderful news!  Lauren is young and strong and will bounce back in no time.   She is so lucky to have such an amazing mom.  Wishing her a speedy recovery.

Re: Lauren's Surgery

Pam,
I haven't been on the board for a while.  I wish the best for Lauren.  You're a magnificent mother.  We know that.  She knows that. 

Wishing blessings to you and Lauren.
Diane

Re: Lauren's Surgery

Thank you all for the well wishes for Lauren. I must say that I am quite uncomfortable with your praises for me. I am just a Mom taking care of her child like any Mom should do. Thank you, though and I'm so glad I have all of you in my corner.

Love you all so much,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren's Surgery

Pam,

Somehow I missed this but just wanted to let you know I am thinking of you, Lauren and the rest of your family.  Glad to hear about the surgery and hope that she is doing well with her recovery.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Lauren's Surgery

Pam,

This is great great news!  I love to hear these success stories.  Praying for lots of liver growth and a successful 2nd surgery.  Lauren is very lucky to have such a great Mom!  Having a "partner" through this battle is invaluable.  I talked to Dr. Sonnenday over the phone when my dad was first diagnosed...he is amazing.

Love,
Nikki

Daughter and biggest supporter of the strongest Dad on earth!
"Attitude is a little thing that makes a big difference."  ~Winston Churchill
"A happy person is not a person in a certain set of circumstances, but rather a person with a certain set of attitudes."  ~Hugh Downs

Re: Lauren's Surgery

Hi Everyone,

We are finally home sweet home!!! It took us two days as we stopped half way at my Mom and Dad's. We got lots of TLC from them and some really comfortable beds, where Lauren got a great night's sleep. We got home late this afternoon and our pups were so happy to see us after being gone for two weeks!! Lauren is very sore and tired from riding in the car. She said she was cold and I took her temp. It was 99.2. I hope it doesn't go higher. I would hate to have to drive all the way back to Michigan! She is still really puffy from fluid. She is on 20mg. of Lasix once a day. It doesn't seem to be helping much. Any suggestions for getting rid of the fluid? It is in her midsection, legs, and feet. I wrap her legs in Ace bandages and she wears them until it hurts too much and we take them off. She also has her legs elevated. I sure hope this goes away soon. We just got a call from Michigan and Lauren has an MRI scheduled for April 28 and a blood draw and visit to see Dr. Sonnenday on April 29. Lauren wants to attend her cousin's wedding on May 4, so I'm sure Dr. Sonnenday will schedule her surgery for after that day. That is about it for now. Take care all.

Love,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren's Surgery

Dear Pam and Lauren, sorry I can't help on the fluids  so there is only one thing to say, WELCOME HOME GIRLS, WELCOME HOME!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Lauren's Surgery

Pam, Glad you made it home and nothing like a happy pup to make you feel so loved!! When I had my second transplant my legs were bigger than giagantic!! They said it was lypmadema (not sure about spelling) and they were wrapped daily by two types of industrial ace bandages, it took the nurse about and hour and a half to wrap them everyday. This went on for a couple weeks. I was told when I was discharged if this occured again to go to a clinic that did this. I know breast cancer usually have this problem in there arm and wear a special bandage. You might check with your daughter or Dr. Sonneday if this could be the cause.
Lots of prayers and HOPE-Cathy

Re: Lauren's Surgery

Oh, a joy to be home, for sure --  but I know from all my rides back and forth from DC to NYC that traveling after surgery is no piece of cake - - every pothole is agony! So rest up, sweet Lauren, rest all you can. Don't let the puppies jump on your middle, wish I knew something about fluids but I don't. Glad to hear all your news! Hugs!
Holly

Re: Lauren's Surgery

Oh, and no worries until the temp gets to be 101, or so I was told. I ran fevers up and down from 97 to 100.8 and back for weeks. The liver is apparently the site of chemical syntheses that help regulate body temperature and so that can just get a little out of whack. Plus your body has just been through so much, it is allowed to complain. Anyway that's what my docs told me. smile

Re: Lauren's Surgery

Thanks, Holly. I won't worry so much then. Anybody got any tips for reducing fluid retention?

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren's Surgery

Pam,
Welcome home my sweet friend. The doctors had to increase my Lasix after surgery because I had so much swelling in my legs and mid section. You are doing all the right things....you are one amazing Mom.....the relationship between you and Lauren is so beautiful.
Love ya
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Lauren's Surgery

I would talk to the Dr about it if it doesn't improve, they may need to up her lasix.
Make sure she is up and moving around.  When she sits, have her elevate her legs.
She should eat lots of protein, it is important for recovering from surgery.
Eggs are good for example.

In the hospital, we used to give a lot of SPA (salt poor albumin) followed by lasix.  It draws the fluid into the vascular space and then the lasix pushes it out, but this is an IV infusion.

Take care and keep us posted.

Susie

Re: Lauren's Surgery

Pam,
I'm so happy that things are going well for Lauren. The only thing I can think of besides the things you're already doing for the fluid retention is limit salt intake and perhaps the doctor has another diuretic he could prescribe if Lasix not doing the trick?  Fluid retention is a common problem after major surgery. Hope it improves soon, I know it's very uncomfortable for her.
        Dianne

Re: Lauren's Surgery

Thanks ladies!! I sent a message to Dr. Sonnenday asking what we should do. The lasix they gave her in the hospital made her pee a ton. Now when she takes it, nothing. Hopefully, he will increase her dose or give her something else. I teased her today and told her she looks about 6 months pregnant with a water baby!! It isn't funny because it is pretty painful, especially her poor feet and ankles. I couldn't resist and she took it well. Gotta have some humor.

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren's Surgery

Pam...so thrilled to know that you are home again.  Don't have much to add to what the others have mentioned, but would also like to encourage Lauren to move around a bit.  It helps rev up the circulatory system.
Good luck and hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Lauren's Surgery

Pam: thrilled to hear you are home! I can't help with the fluid retention but I called my feet the "Shrek" feet!! I hope Lauren's swelling goes down quickly.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Lauren's Surgery

Great news Pam - it's lovely to know that Lauren is going in the right direction.  Take care of yourself too.

Clare

Clare

In the stars now . . . .

Re: Lauren's Surgery

Hi Everyone,

We aren't going to be home for long. We went downstairs to the basement today and Lauren stepped on the scale, curious to see how much she weighed since she hasn't been eating very much. We couldn't believe when we looked at the scale that Lauren gained 29 pounds since her surgery day which was two weeks ago. It is all fluid. This is how puffy the poor thing is. I called Dr. Sonnenday's office and talked to his nurse. I told her about the swelling and that her incision site is weeping a little. She paged Dr. Sonnenday and he ordered a set of labs. We went to our local hospital for that and they faxed the results to him. He also wanted to see Lauren this Friday and ordered an ultrasound test for Lauren's legs to make sure she has no blood clots. He also upped her Lasix dose to Two 20mg. tablets instead of one daily. She seems to go to the bathroom a little more today. So it is off to Michigan for the day on Friday. Another weird thing that has happened is that Lauren is losing her hair again. She hasn't had chemo since Feb., but her hair was falling out in clumps. So, today after the hospital, we took Lauren and she got her hair cut really short, not buzzed. She looks cute in any hairstyle, but she was trying so hard to grow her hair long for her wedding. Just thought you all might like to know what is going on. Thanks for caring.

Love,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

71 (edited by Darla Wed, 10 Apr 2013 19:15:05)

Re: Lauren's Surgery

Oh Pam,

So sorry to hear about this latest development.  Hoping that you will get some answers on Friday and things will turn around so that Lauren can get some relief from all of this.  Good luck on Friday.  My fingers are crossed for the best results.  I'll be thinking of you and Lauren. 

I have to agree that Lauren is cute no matter how long or short her hair is.  She is a beautiful person both inside and out.  smile

Thinking of you both and hoping for the best.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Lauren's Surgery

I've been off site for awhile because dad has been having the same issues as Lauren...severe swelling in his stomach, legs & feet.  I did research to find out what all of the swelling meant and finally talked him into going to the ER on Saturday morning.  He ended up in the hospital for a couple days.  The Dr drained 5 liters of fluid from his stomach (which I knew would be the case).  He is back home now but still has some swelling in the stomach.  From what I understand, only 5-6 liters of fluid can be drained during a single procedure.  So we are sure that if there was no max, another couple liters could have been drained.  He is 18 pounds lighter from what he weighed Saturday.  He had lost all ability to eat or want to eat because he would feel miserable after two bites. 

I share all of this to share dad's experience on the fluid retention. In addition a blood clot was also found in each leg.  Never a dull moment...right Pam?

Well I wish Lauren all the best!  She sure sounds like one tough cookie!  Big Hug!

Rena

Re: Lauren's Surgery

Wow, that is a lot of fluid.  I'm glad she had labs and is going to see the Dr. I will be praying for Lauren and your family.  Keep us posted.

Take care,

Susie

Re: Lauren's Surgery

Pam, I am really sorry to hear about the fluid problem Lauren is having. Also don't understand the hair falling out or not eating much but Dr. Sonneday sure sounds great.  When I hear now  that anyone is not eating much it takes me back to February with myself and it really upsets me. But I am sure Dr. S. will have an answer tomorrow. I like short hair on Lauren and she still has time to grow her hair out before the wedding. I am crossing everything I own for good results tomorrow.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Lauren's Surgery

Dear Rena, sorry about your Dad's water retention as well. How is he feeling now? I hope he has started nibbling again. How long would they have to wait if he needed more drainage? Sending you all the best and please keep us posted!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.