Topic: Rare Cancers Patient Empowerment Day UK

I found out about this via AMMF, the UK CC charity.  Apologies if I have posted in the wrong forum.


The Rarer Cancers Foundation is holding a patient day for cancer patients, carers and their families in order that you can gain a better understanding of the care and support you should expect after being diagnosed with a rare or less common cancer.

The conference (3rd June) will explore many of the options available to patients such as referrals to expert second opinions, specialist cancer centres, clinical trials, radiotherapy, access to drugs and much more besides. For more details and a registration form, click the link:

http://www.rarercancers.org.uk/forum/vi … &t=295

Clare

In the stars now . . . .

Re: Rare Cancers Patient Empowerment Day UK

Thanks for that Clare. Should be very informative and handy for new patients, families, carers etc recently diagnosed in the UK. No problems with posting it here! Thanks again.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Rare Cancers Patient Empowerment Day UK

Clare......thanks so much.  Information such as the one you provided is so very helpful to others.  Will you be able to attend this conference?
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Rare Cancers Patient Empowerment Day UK

I'm not going Marion.  I hadn't even considered going partly because my sister has died but also it is in London which is just too far for me to go.

Any UK members on the board hoping to go?

Clare

In the stars now . . . .

Re: Rare Cancers Patient Empowerment Day UK

Too for for me as well right now with things the way they are with my mum at the moment. Think as well from reading it that it is focused mainly on patients attending, it says that patients get free entry. Perhaps carers, familes etc would have to pay.

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Rare Cancers Patient Empowerment Day UK

We could check with Helen (AAMF) to see whether she is participating or if someone she knows can report back to us.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Rare Cancers Patient Empowerment Day UK

I'll be getting in touch with Helen tonight Marion as I need to speak with her about something anyway, so I'll mention the conference and see if she is attending it.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Rare Cancers Patient Empowerment Day UK

Thanks, dear Gaving.  Please say "hi" to Helen.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Rare Cancers Patient Empowerment Day UK

Will do Marion!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Rare Cancers Patient Empowerment Day UK

Marion,

Got in touch with Helen last night, and she says hi to you as well! She will be attending this patients day and will no doubt post her thoughts etc about it all on her website and FB page afterwards. She also said that AMMF work with this organisation when it comes to all matters relating to CC as well. Mentioned that I think they will be doing more of these days throughout the UK this year, and if they do one up here in Scotland then I will see if I can attend it.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Rare Cancers Patient Empowerment Day UK

Thank you, Gavin - great news.  We can then await Helen's report on her website and you, dear Gavin, to provide the link for us.
Thanks for all you do.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER