Re: Treatment Centers/Physicians

Dear Susan, welcome to our remarkable family and Congratulations  to your husband for being a CC Survivor. Good to have you aboard but sorry you had to join us. Please jeep us updated as to his continued success, we really care around here!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Treatment Centers/Physicians

Hi Susan....also want to greet you with a warm hello and thank you for your entry.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Treatment Centers/Physicians

I believe that I have posted here earlier that my brother Bruce, in Pittsburgh PA, has been blessed with the following amazing life-saving doctors:

GP:  Dr. Jim Gleason (found Bruce's cancer initially)
Oncologist:  Dr. Stanley Marks
Surgeon:  Dr. Wallace Marsh

Today, Bruce had the wonderful fortune of meeting with Dr. Weijing Sun at UPMC in Pittsburgh (Dr. Sun was at U. Penn in Philly for 15 years.) - Dr. Sun is a specialist in CC and was able, after meeting with Bruce for several hours, to provide hope and a plan for going forward.

(Again, Bruce was diagnosed 3 years ago with CC and is still fighting the good fight.)

Re: Treatment Centers/Physicians

OMGOSH, Patti, that is just wonderful news. Can you tell us anything about Bruce's new plan? And thank you for this very hopeful update on Bruce.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Treatment Centers/Physicians

Patti,wonderful news. My liver surgeon is at The Cleveland Clinic but prior he was head of liver transplant at UPMC. I would love to hear the new plan.
Thanks for sharing this uplifting news.
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Treatment Centers/Physicians

Thanks for the comments, Lainy and Lisa!  Bruce has had a very rough past month...he has been exhausted (could hardly lift his head), had chills, fevers and some pain.  Also, some "distention" in his abdomen.  He has been around the barn with his doctors and in the hospital...everyone looking for an infection and not finding it.  The only news we did come up with was that his hemoglobin levels were low which contributed to the exhaustion.  They did give him a blood transfusion and we added more iron to his diet.  He has also had some reoccurance: (small) tumor in his liver and a lymph node that "looked like it might be cc" so they have been radiating those spots.  Because of low platelets, Bruce has been unable to take chemo (gemzar/cisplatin) which has been excellent at reducing tumors or keeping at bay.  Bruce's CA199 has been around 10-14 for the last several months which is great.  Bruce had his CA199 checked last week (worried, as he has not been on chemo) and it has moved up to 33.  Still...it is at the high-end of the normal range.

After meeting with Dr. Sun, he informed Bruce that his distention is being caused by low albumen levels which cause fluid to build up in cells.  He wants him to take a protein powder to raise those levels and add more protein to diet.  He also told Bruce that the chills & fever are what he believes to be cholangitis...which we had suspected...but the other doctors had ruled out.  He said that it was hard to diagnose the cholangitis (I believe these are his words) because it was "contained" in the liver.  He wants Bruce to complete the radiation and them will start him on a new chemo regimen...which I will provide more details when I have them.  The best news of the day was that he "had answers" for my brother on why he felt so sick...and my brother sounds like a "new man."  He just needed a good dose of hope and Dr. Sun provided it.  I will write more when I know more.  On with the roller coaster ride...

Love and God bless!

Re: Treatment Centers/Physicians

Hi all...thought to revive this thread again.
Thanks much,
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Treatment Centers/Physicians

Just saw this.  Here is my doctor:

Dr. James Abruzzese
Chair, Gastrointerology Oncology
M.D. Anderson Cancer Center
1515 Holcombe
Houston, Texas

He is over the entire department and I knew someone who knew him.  I'm not certain if he always accepts new patients.

Re: Treatment Centers/Physicians

Thanks, Kelly.  Much appreciated.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Treatment Centers/Physicians

In Australia, my husband has been operated on by two excellent surgeons.

Canberra:

Dr Charles Mosse
Hepatopancreatobiliary, Upper GI and Advanced Laparoscopic Surgeon
Calvary Clinic Specialist Medical Centre / Suite 20
40 Mary Potter Circuit
Bruce ACT 2617
Tel: (02) 6253 4122


Sydney:

Dr Charbel Sandroussi
Upper Gastrointestinal, Hepatobiliary and Transplant Surgeon
100 Carillon Ave, Suite 306 RPAH Medical Centre
Newtown NSW 2042
Tel:  (02) 9565 1375
Operates at RPA and the Mater Hospitals.

Genevieve

Re: Treatment Centers/Physicians

This is my mothers Dr who has successfully treated and operated on my mother since diagnosis in August 2004. 9 Years! I encourage anyone with CC to contact him. He has an excellent bedside manner, works well with the families and his knowledge and talent is truly a God given miracle. He is honest and straight forward and proactive. His team will answer calls and emails day or night.


214-820-2050
Dr. Robert Goldstein, MD, F.A.C.S, Baylor University Medical Center, Surgical Director, Pancreas Transplantation
Surgical Director, Living Donor Liver Transplantation
Hepatobiliary Surgery

Following is a plug for the DR -

Dr. Goldstein is a hepatobiliary surgeon and the surgical Director of Pancreas Transplantation and Living Donor Liver Transplantation at Baylor University Medical Center in Dallas. He is board certified in general surgery and critical care medicine.

He currently oversees the Baylor Liver and Pancreas Disease Center offering comprehensive evaluation and treatment for liver tumors, pancreatic tumors and chronic pancreatitis. He has a special interest in bile duct tumors and injuries.

The following treatment options are available to liver and pancreas patients at Baylor University Medical Center and Baylor All Saints Meidcal Center in Fort Worth:

Chemoembolization
NanoKnife (irreversible Electroporation)
Cyberknife®
Radiofrequency Thermal Ablation
Advanced Laprascopic Resection
TheraSpheres®
Transplantation
Total Pancreatectomy

Re: Treatment Centers/Physicians

Hi everyone,
any info around San Diego area?  From my research, UCSD Moore cancer center seems like a very good option.. but any specific physicians there or any other centers?

Many thanks,

Jeeyoung

163 (edited by Lainy Thu, 21 Mar 2013 12:35:37)

Re: Treatment Centers/Physicians

Jeeyoung, I found this article and even though it is older, it hsows how amazing Moore CC is! If I find anything else I will post it.

http://ucsdnews.ucsd.edu/newsrel/health … emming.asp

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Treatment Centers/Physicians

Jeeyoung, I FOUND IT...this is what I was looking for:

Dr. Alan Hemming Surgeon, UCSD San Diego

Dr. Paul Fanta, oncologist, UCSD Moore's cancer center

Dr. Thomas Savides, ERCP, UCSD San Diego

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Treatment Centers/Physicians

Lainy!

Thank you so so much!!!!  I've definiltey seen Dr. Hemming's name in my reserach!

Thank you!!!

Re: Treatment Centers/Physicians

Jeeyoung,

Moore's Cancer Centre is also mentioned here -

http://www.cholangiocarcinoma.org/healt … rition.htm

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Treatment Centers/Physicians

Gavin,

Thank you so much!

Jeeyoung

Re: Treatment Centers/Physicians

Hi, thought to revive this thread again with the physicians/treatment centers only.

Thanks everyone.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Treatment Centers/Physicians

My father is being treated at Memorial Sloan Kettering in New York by Dr. Eileen O'Reilly The most caring and professional folks I've ever encountered.

Re: Treatment Centers/Physicians

Great idea to revive this thread Marion and thanks for adding  to it Adam!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Treatment Centers/Physicians

Hi all,
thought to revive this important thread again.  Thanks so much to everyone for sharing the names of your physicians and/or treatment centers.

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Treatment Centers/Physicians

I wonder if anyone has ever gone through this thread and compiled a list of doctors and treatment centers?  I would be happy to do it as long as people are aware it will take some time to do and in no way is a recommendation of any specific doctor.

Should I go ahead and do it?  Thoughts?

-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Treatment Centers/Physicians

Wonderful idea.  Thank you for taking the time to do this for us.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Treatment Centers/Physicians

I will add my husbands info--

We are being treated by Dr Sunil Sharma at Huntsman Cancer Institute
Salt Lake City, Utah.

We had a consult with Dr. Jonathan R Whisenant at Intermountain Medical
Center in SLC, UTAH as well.

We liked both Dr's, both had the exact same diagnosis and treatment options.

Not sure if anyone else has added these to your lists~
Hope that helps~

Dorien

Re: Treatment Centers/Physicians

I also noticed that Huntsman Cancer Institute is not on your "list" of hospitals....

is that because it's not top ranking for this kind of cancer? 

just curious.

It's a pretty top ranking cancer hospital, but possibly not for CC.