Topic: Introducing The New patient Network Website by FDA on 4-23,2013
I attended a FDA webinar for the patient-focused group rep. on 4/19,2013;
We were told to encourage all the patient advocates and their members to visit the new " FDA Patient Network Website" to learn more about FDA;who they are and what they are working on the forefront of medical devices , new drug development and current available clinical trials for patients.
At this early development, the FDA Patient Network Website is a one way street for information only and patients cannot log in to ask questions.
However, on May 21st, there will be a chance to log in and chat with the FDA;more or less like a town hall meeting or a Q&A session.
-patient can read the biweekly newsletter published by FDA at the website.
-patient can listen and learn from the recorded webinars of the issues at hand(ie: drug development,how to become involved as a FDA representative)
-patient can comment about FDA issues on the website as well as other issues.
-patient can learn about the 4 stages of clinical trials development .
-patient can learn about the new approval of new drugs and medical devices.
-patient can find out the other options of treatments like"off label use" and "expanded access "for those exhausted treatment plans.
-patient can learn more thru FDA seminars that will be presented in the late summer and fall about medical devices , new drug development and clinical trials specially designed for patients and their advocates.
-patient can get info on drugs that NOT yet approved.
The slogan for this new FDA patient Network Website is:
Get involved,Get informed,Help FDA,Help Patients have a bigger voices.
The website address will be: PatientNetwork@fda.hhs.gov and it will be announced by the FDA commissioner on the morning of April 22,2013.