Re: New member

Pat:  Oncologist appt today for second opinion.  I live in Syracuse,NY and have heard lots of great info about this group.  De. Scalzo confirmed what I learned at Cleveland Clinic but he had suggestions on how to move forward and what to do if cancer comes back. Found out that it mets still called cholangiocarcenoma and not receptive to chemo.  This group treats the whole person: integrated Oncologist, wellness center, massage, reiki dietician.   I feel very good about appt and my future.

Gregg

27 (edited by hercules Tue, 23 Apr 2013 06:36:30)

Re: New member

I remember coming home from surgery, and one difficulty I experienced was constipation from the percocet. I stopped using the pain pills the second day I was home and began using cannibis the seventh day after surgery, and I have used it regularly ever since.I did support  a few people who had this cancer and I did not share with them that cannibis was a part of what I did.I did not want to tell them because it is illegal here and the negative rap it has gotten my whole life makes it hard for me to advocate. I kept it to myself and now I feel bad I did not share that detail about what I have done. None of them did well and maybe that is a relevant detail as to my survival.When I wrote about not being afraid to die, I meant I did not stress out about that possibility, and allowing fear of the unknown to cause anxiety is the most harmful thing you can do. Believe it or not we all have to focus on the positive things in life and I went back to work in just 10 weeks after surgery and getting back puts your body into its usual routine. Its hard just getting out of bed at first and taking care of your resewn stomach muscle is critical as muscle does not heal or grow back, know early on that a muscle that was cut and restitched together is just that, a stitched up muscle, it will form scar tissue around the stitches but they are what is holding it together so be careful how you tax it. It will strengthen and feel better as time goes on but don't plan on being a sit-up champ from here on.I wont be doing any swim suit photo shoots myself as my scar resembles a mercedes benz emblem, every surgeon is different, one gal I knew said her resection scar resembled a lexus emblem. Whatever scar you have, you must be careful not to lift anything heavy and go easy the first year, slipping on ice and tensing up to catch yourself is the worst. More important than anything, a bright young surgeon on the team of doctors that did my resection, Dr. Mackey said every cancer case is different so dont be discouraged by the statistics, and if you pull a small hernia in your muscle repair dont let anyone mess with it, it requires a skilled hand to stitch a stomach up correctly like yours and mine. After seven years mine is a little bumpy but it is beautiful in my eyes. Sorry for the long post but I am trying to remember how it was, My doctors werent very encouraging early on, and they informed me it can return. I was told by one my odds for reoccurance was 50-50, so I guess it was heads. However as time went by my onc and I, Dr. Pelley at cleve clinic became very good freinds and my 6 month visits were pleasant for both of us and as years have now passed we hug when we see each other. Let me know how you do with your massages and such, I wanted to try that stuff but when I went back to work it was hard to find time ... I am cheering for you Gregg so take care,Pat

Re: New member

Gregg, I truly apologize for my confusion on that earlier post. I would not have used the examples I did otherwise. I need to concentrate on my train of thought when typing, I am  very slow at typing and my thoughts outrun my fingers very easily. I hope you are doing well, and you are getting close to your first scan after surgery. I hope you are getting around by now pretty well and I have been thinking about you. Your second opinion and your plan of action is great, and you made me realize how sloppy I have gotten on my program to keep this cancer in check. I have made an appointment to see my gastro doc in May  and I will have him order a scan. My best odds are to get right on it if it does rear its ugly head. I hope all is well with you and please let me know how things are, take care, Pat

Re: New member

Pat:   No apologies necessary.  We have the big C. Tomorrow I have Reiki Therapy session.  In Syracuse the Y has a program LIVESTRONG for cancer survivors.  Exercise program for free.  Will be signing up and starting June 4th. I feel having a plan is a good thing.

Best of luck.

Gregg

Re: New member

Hi Gregg,

Have you had a Reiki session before? My dad used to get them every week and he loved them! He was sceptical of the benefits at first, but after his first one he was hooked and they helped him loads! Hope you enjoy it! Hope your exercise sessions go well and yep, having a plan is a good idea!

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.