Topic: Initial post
Hi. I came across your foundation website when I began my research into intrahepatic cholangiocarcenoma. My wife was just diagnosed with ICC. We have not started treatment yet but the course laid out for us is chemo (gemcitabine/cisplatin) and then radio-embolization.
As with many others posting, this was an absolute shock as she is very healthy, active and very health conscious. She always goes to doctors for care and for maintenance procedures.
We live in Eastern US and are planning to get consult visits at a few cancer centers, including Sloan and U. of Penn. Trying to set those up now.
We are also going to pursue clinical trials if she is a candidate.
Right now our heads are spinning. But we are preparing for battle and have a great support group of friends and family.