I am not sure how to post on this. I was diagnosed with CC in September and have been reading your site and am very interested in the discussion board. I am a 49 year old female. I live in Canada. I have lots of comments and questions and possibly good information on things that I have found have helped me.
I started with issues of stomach and back pain. Then I started to lose weight and not be able to keep food down. I went to the Dr. in June they did a CT scan and nothing showed up. she did blood work nothing there. They tried prescriptions for irritable bowel and things of that nature. I continued to lose weight. I was hospitalized in September with Jaundice. Originally they thought I had gall stones and that they would do surgery and remove the stones and the gall bladder but with further testing discovered CC. I was in the hospital for 6 days. They did many tests ultra sound and MRI. They sent me home with a scheduled visit with a liver specialist/surgeon. At that visit he told me I was stage 4 and that it had traveled to the liver. The original tumor was in the bile duct. They said it was on the CT scan in June but was so small that it was missed. In September it had grown and was blocking the liver from functioning so that is why I was jaundice. Since then they did a biopsy and PET scan to be sure. I seen the oncologist and they said chemo would not help to shrink the tumor and risky because I have had so much weight loss. I weigh between 77-81 pounds. I am doing well with pain meds. They put me off work but I am up and about and eating small meals often and have mostly good energy levels. I am very positive and am enjoying life.