Topic: Distal cholangiocarcinoma and necrotic pancreatitis..

Hi,

It's about my dad who firstly had an ERCP and after that,he developed a necrotic pancreatis.He was scheduled for Whipple but because of pancreatitis the surgeon decided not to extirpate the head of the pancreas and it was like whipple but without the head of the pancreas.This happened in january.We waited until the mid of april to heal the pancreatitis,it was a peripancreatic liquid that was drained and we had to wait until it was no liquid.Probably next week we will start chemo,but i don't know.. some oncologists says that it is no problem with pancreatitis,others says that it may be a problem and i don't know.. Is there anyone who had the same story..? And i have one more question,this delay between the surgery and chemo,aproximately 3-4 months can reduce the chance of cure..?

Thanks!

Re: Distal cholangiocarcinoma and necrotic pancreatitis..

Hi,
sorry, I do not know the answer. 2nd opinion by another GI specialist  is highly recommended.

God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Distal cholangiocarcinoma and necrotic pancreatitis..

Dear Nick, welcome to our remarkable family but sorry you had to join us. Your story is so similiar to my husbands! In August of 2005 my husband Teddy who was 73, jaundiced after itching for a couple of weeks. We thought in the beginning it was an Allergy. He had an Endscopy along with an MRI and we got the Diagnosis CC. There was no question, had to do a Whipple. The ONC Surgeon said the longer I am in Surgery the better it is as it will be about an 8 hour surgery, and after 4 hours, he came out and said, "I have good news and not so good news". My first thought was, I didn't hear all bad news. The dye from his Endo leaked on the Pancreas and practically destroyed it. From what the Surgeon could see there were no METS.  Like your Dad he needed the head of the Pancreas to be removed and it would have to heal first so after 4 hours the surgery was aborted. We waited 3 weeks and the Surgeon felt it would be healed enough and did the Whipple again. It was totally successful! So, bottom line is why won't he do the surgery now? For CC the ony cure is surgery. I would get a second opinion now, we are big believers in 2nd opinions. No one can really know how much or how little growth will happen in a given time frame. Please give considertion to another opinion. And please keep us updated on your Dad.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Distal cholangiocarcinoma and necrotic pancreatitis..

nick....I agree with the others.  This is a complex disease and warrants more than one expert opinion.  Please keep us posted.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Distal cholangiocarcinoma and necrotic pancreatitis..

hi,
The cancer was removed(said the doctor..),but i hope it didn't move to the pancreas.. We are scheduled tomorrow to see another oncologist and probably we will have another MRI test and we will find if another surgery can be done.The fear that i have is that delay between surgery and chemo.For us it took 3 months for pancreas to heal,something that is worrying but all doctors said that is normal.. my dad had an 7 hour surgery and it was so neccesary because the stent didn't work,neither the biliary anastomosis and because of this, doctors considered we can't wait for pancreas to heal(his bilirubin level didn't seem to reduce..)  thanks for advice and like PCL said we will go to see another GI.I will come back with news.
Thanks for your help!