Re: Lauren's Surgery

Pam,

I'm so sorry to hear about the difficulties Lauren is having.  I know it must be frustrating having to go back to Michigan on Friday but I hope they can resolve the fluid retention and bring Lauren some relief from that.  I feel for both of you and will keep you in my thoughts and prayers.

Peace,
Mary

Re: Lauren's Surgery

Hi Everyone,

We went back to Michigan yesterday and we are home again. Rather than type all this out again, I will give you Lauren's blog address and you can read about our visit there. I think she should start feeling better soon. Thanks for caring.  -Pam

www.loveandhopeforlauren.blogspot.com

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren's Surgery

Dear Pam and Lauren, Sounds good to me, if the Doctors are so happy about Lauren that is the best sign. Now hopefully you both can have a 2 week reprieve. Anything is worth it for good news!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Lauren's Surgery

Hi Pam,

I'm sorry for all the trouble Lauren is experiencing but it sounds like she is on the upswing now.  I hope walking on the treadmill will help her legs with the fluid retention.  The two of you are going through so much.  I really feel for you.

Take care,
Mary

Re: Lauren's Surgery

Thanks for that Pam.

Hugs to you and Lauren,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Lauren's Surgery

Thanks, Lainy, Mary and Gavin. Lauren feels better today and her legs look a little less puffy. She went downstairs and walked on the treadmill for 15 minutes. She is trying so hard to feel better.

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren's Surgery

Pam, I'm glad to hear Lauren is doing as well as she can.  I will pray for her to get back to a life where things are half way to normalcy.  I understand how you can loose so much weight.  I went from 169 to 113 pounds in 8 weeks.  Time is what it will take to get her strength back and some good old fashioned cooking if she is able to handle it.  I am fortunate to have a husband who stepped up to help me.  I laid on the love seat during the day and in bed at night.  I don't remember a whole lot from back then.  I'm glad they were able to remove some of the cancer from her body.  My cancer is in operable.  It is in my biliary tree and it has metastized to other parts of my body.  The good thing about my cancer is my CA 19-9 is only 36.  I'm doing better than they expected me too and I'm told it is because I'm too d__ stubborn to give in so I'm glad Lauren is stubborn as well.  My doctor has suggested I go to Ohio State Medical Center to see about some options I may have to improve my outlook.  Oh and I should say I don't log on to this web site as often because I do try to pull a full time job and I'm on the computer at work all day so I don't particularly like coming home and getting on the computer here.  All of you take care of yourselves and each other for in that is where you will find hope and a little understanding of what is to come.  Take care.

Re: Lauren's Surgery

Hi Faith, I am so glad to see your smiling face and thanks for catching up around here. I HOPE you take your Doc up on that other opinion, you never know how someone else will see things. If stubborn is working, then stay stubborn! I love comfort food. Teddy did well on it too. Like homemade chicken soup, tuna casserole, chicken stew with dumplings. Now I am getting hungry, Wishing you the veru best and please let uf know if you go to OSMC.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Lauren's Surgery

Pam, I'm sorry Lauren isn't feeling so hot yet, but it's great that her blood work is normal.  And I'm so happy the dr's don't think it's ascites.  I was so worried she was going to be readmitted.  Glad she gets to recover at home instead of in the hospital.

Take care and keep us posted!

Susie

Re: Lauren's Surgery

Pam...so glad to know that Lauren is loosing some of the fluid retained.  It is understandable to not want to move around much when pain is involved (legs) but the crazy things is that often times it is the answer to a problem. 
At least things are on the upswing.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Lauren's Surgery

Hi everyone. I thought I would update on Lauren for those who don't read my blog or get on FB. She is doing much better. In the last two weeks, she has lost 30 pounds of fluid. The last couple days she has lost 3 and 4 pounds each day overnight!! She is still tired and loses energy fairly quick and her appetite has not returned very much yet. She is starting to do a little more. She walks when she has the energy. We went to lunch with Lisa yesterday and Lauren and Gio went to his house tonight and had friends over for the first time since her surgery. We will be heading back to Michigan for an MRI on Sunday and labs and a visit with Dr. Sonnenday on Monday. We will probably learn her next surgery date at that time. That is about it for now. I will update when I hear anything new. Thanks for all your nice replies.

Love,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren's Surgery

Great Pam!

Re: Lauren's Surgery

Well Pam, sounds like things are 'flowing' nicely. I hope the visit this weekend goes swimmingly well! Oh, and I know the pounds are floating, oh don't I know. Out here in Phoenix people are starting to put towels at the base of their doors!  All kidding down the drain, you know I try to make you smile even while your shoes are getting damp. I have everything crossed for your visit Sunday and Monday....keeping everything crossed is the only way to stay dry. LOL

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Lauren's Surgery

I just read your latest blog entry.  I love all the dog pictures!  They are cuties. 
Glad to hear Lauren is improving and look forward to hearing her surgery is set.
So glad to hear she lost so much weight.
Take care,

Susie

Re: Lauren's Surgery

Pam...Susie made me do it - glad she did - I love reading the blogs on our site. 
It is wonderful to see that you have become such great buddies with Lisa and are able to keep up your lunch dates.
Lauren is bound to be tired - the liver can be quite unforgiving and the surgery is adding quite a bit more - but she will regain her strengths and will enjoy her wedding as any bride should.
Good luck on Monday.  Loving thoughts are accompanying you to the visit with Dr. Sonnenday.

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Lauren's Surgery

Thanks, Lainy, Susie, and Marion. Lainy, you are CRAAAAAAAAAAAAAAZY!!! But I love you. Haha.

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren's Surgery

Pam,
I am just logging on as I've been gone a while... Just wanted to send more healing wishes Lauren's way and tell you I'm glad her health has improved SO much.
Willow

Willow

Re: Lauren's Surgery

Lauren had her MRI on Sunday and we met with Dr. Sonnenday today at U of M. He said he was happy with the way the scans looked. Her liver had filled in where he removed tumors and there were no signs of any more tumors on that side. He said her liver hasn't regenerated as much as he's hoped, but considering how much chemo she has had and the Theraspheres, he is happy. Her labs were all in the normal range which is great. He told her she can quit taking the Lasix, potassium, and Lovenox. He thought she looked much better since losing her fluid and her incision is healing nicely. He informed us that Lauren's next surgery will be on May 15th. That just so happens to be my birthday, and what a great birthday present that will be to have my daughter get the bad part of her liver removed!!! I couldn't ask for anything better! So, she will be having the right side removed, possible inferior vena cava reconstruction, and portal lymph node dissection. He said depending on the extent if any vena cava reconstruction, this surgery will be between three and eight hours. She will probably be in the ICU for one night and in the hospital for around a week. Lauren's oncologist, Dr. Zalupski popped in today for a quick visit too, and thought Lauren looked great. We asked Dr. Sonnenday if someone could take pictures of her tumor when it is removed and he said yes. This is the huge one that when first discovered was 17cm. x 19cm. It has shrunk some, but is still quite large. We just really want to see what it looks like. I will probably post a pic on the blog. Lauren is psyched for this surgery and knows now what to expect. Thanks in advance for your prayers. We wouldn't be nearly as strong if it wasn't for your support.

Love,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren's Surgery

Pam this is the bestest news ever. That gives Lauren 2 more weeks to rest up and get her strength for the surgery. I find it amazing how fast the liver restores itself. We will all be sitting in that waiting room with you on the 15th. Love you both!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Lauren's Surgery

Hey Pam,

Such fantastic news.  I am so happy for Lauren.  I know she will do well. 

I will keep you all in my prayers and light a candle for all sufferers of this disease when I go to church to celebrate our Easter this weekend.

Take Care
Lou

Re: Lauren's Surgery

Dear Lou, thank you so very much. Candles and Prayers always very much appreciated on this Board, they do work miracles. You are very kind, indeed.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Lauren's Surgery

Lainy wrote:

Dear Lou, thank you so very much. Candles and Prayers always very much appreciated on this Board, they do work miracles. You are very kind, indeed.

Thanks Lainy...always a pleasure...have been lighting many candles recently

Mother in Law - Stomach Cancer (Remission)
Father in Law - Prostate Cancer and Renal Failure (Remission)
Sister in Law - Double Lung Transplant
Mother - Bile Duct Cancer
Me - Potential Redundancy at work after being with the same organisation for 29 yrs...great timing ...out of my control....lol

Cheers Big Ears
Ilias aka Lou

Re: Lauren's Surgery

Pam,

Great news about Lauren!!!  I will be thinking of you guys on May 15th.  Lauren is one strong cookie and with you by her side, she will make it through this surgery!

You're in my prayers.

Mary

Re: Lauren's Surgery

Pam this is just great news to read:-)

Clare

In the stars now . . . .

Re: Lauren's Surgery

Such great news Pam (and Lauren)!!!  May 15th will be a lucky day, your birthday, Lauren's surgery, and my MRI!!

Love,
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.