Topic: My world has turned upside down, dad diagnosed with CC ;'(
As I'm typing this I can't stop crying. I been crying everyday ever since my dad was diagnosed with extrahepatic CC which was in mid March 2013.
Around January/Feb of 2013 we noticed he was losing some weight and he was not sleeping , just few minutes here and there. He went to see his PCP a few times and was just told it was all related to diabetes , had some labs done and was given sleep medication which did not work at all. Following his glucose/sugar readings where going higher and higher 300's. He was always just laying on his bed , started to look depressed and very pale. I kept on telling him we should go to hospital which he refused to , March 12 went to see his PCP for same issue of not sleeping and actually saw a different dr since he was not available.
The Dr looked at him and immediately noticed how pale his skin was yellowish and by then my had some yellowish color in the eyes . She told my dad that labs done a week ago where very bad . Biliruben was high and she sent him to the hospital to ultrasound done. Hospital did US, CT scan and and ERCP with stent placement .Later that night was diagnosed with a mass.
Fast forward a week later dad went to see oncologist for first time , told my dad he had CC but is confident that it can be resected. Told him he will need major surgery to remove the tumor and also do a liver resection. The Whipple surgery is what is called.
Later in the visit dad wasn't feeling well at all, Oncologist noticed my dad was very dizzy and couldn't keep his balance and admitted him to the hospital. Turn out my dad was bleeding from the inside ( Maybe from ERCP, when they did brush biopsy )and was losing blood. blood pressure was very low , sugars in the 600s! He had a blood transfusion twice and was in Intensive care for 2 days , total 6 days in hospital. I thought I was going to lose him that weekend. I feel like I been living a nightmare.
After coming back home we met with oncologist in April and told my dad he needed to gain some weight and bring up his nutrition levels for surgery. He was instructed a high protein diet and insulin shots. I was scared that if we wait too long for surgery this tumor might spread we had no choice since dad was weak and would not make it if he had surgery that time.
My dad slowly went back to his old self after the ercp he is now able to sleep , slept like a baby and his diabetes is better controlled , and went from 140 lbs to 155 lbs .
May 3 - Dad went to see oncologist and has been cleared for surgery which is this Monday May 6 , 2013. The Dr said gave us a 60-80% that it can be taken out and the day of surgery they first need to see if it did not spread and if it did no surgery will be performed.
I am very scared , nervous, I love my dad so much ; he is only 59 yrs old , every time I see him I just breakdown inside, I never cried in front of him because I have to be strong for him but as soon as I come home I just break down, I wake up crying, as I drive to/from work I cry , sleep crying , I have become depressed because I can't handle this . It been a hard month and a half and I feel like I am being affected more by the news than my dad . He seems calm and happy and says that if God wants to take him, he is ready
The only person that has seen me at my worst is my Husband , he has been my rock and I just love him so much . My whole family is very worried , my mom is being strong for him too, they been married 30 years.
Please , PLEASE keep my dad in your prayers, I will keep everyone updated and sorry for the long post.