Topic: Cannot believe how we've been treated
I am not sure if this is the best location on this board to post this message, but since it relates directly to my wife's first ever chemo experience, I thought this would be OK.
Horrifying week due to the Oncology team treating my wife. On Sunday, my wife was admitted to the hospital due to pain levels increasing. We had been scheduled for our first chemo treatment on Tuesday. However, when the Oncologist talked with us on Monday, we were told the bilirubin level was too high (2.9) to begin treatment. And there was nothing more they could do if this number did not get better. NO other options. We were beyond stunned. I reached out to other contacts who did not agree and I was ready for a battle. Fortunately, the number dropped by Tuesday morning and they agreed to continue with treatment on Tuesday.
On Thursday, still inpatient, the Oncologist came by and said - once again - the bilirubin level jumped to 5 and there was nothing else they could do for us. So twice in three days I find myself trying to console my wife, my two young adult children, and my wife's mother.
I reached out to the two doctors at major cancer centers where we had gotten second opinions (they had agreed with the initial Gem/Cis plan so we felt comfortable having it performed locally). They both felt there was no reason to stop treatment and offered to speak with our Oncology team.
When I suggested it to the Oncologist (even gave the business card to them), the response was "Let's wait till Monday". This was on Thursday. So we were left having to wait 4 days before they would even talk to someone willing to discuss my wife's case. And we still weren't sure if they would even do the chemo on the following day.
The end result, only because of having to push them, was we will have the next round of treatment on Tuesday.
I just can't believe how we've been treated.
Through this episode, the real positive news is my wife had minor side effects to the first round and is feeling (and looking) better every day.