Topic: Redic high CA19-9

My husband, Travis (age 38 with three kids) was recently diagnosed with CC.  They told us that his CA19-9 numbers were at 91,000.  We asked if it was a typo.  They said no.  Has ANYONE ever heard of such a thing.  We went to MD Anderson and we forgot to ask the dr there about it.  Not sure it matters.  I just think that it is so bizarre. 
Thanks,
Carrie

Re: Redic high CA19-9

Carrie....yes, we have seen these number this high.  The oncologist will use this number as baseline; a downward trend will reflect positive response to treatment.  And, that is what I wish for Travis.
Hugs,
Marion

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Re: Redic high CA19-9

Carrie, my husband ( was 42 when diagnosised) too had high numbers. I believe his was around 25000.
With treatment his did get as low as 70 but now are back up to 363.
It's scary but hopefully with treatment is numbers will lower.
Sending hugs your way,
Michele

Re: Redic high CA19-9

my initial ca 19-9 was at least 4000, so yes, they can get up there.