Topic: New member

Hi I'm Martha.  My husband was recently diagnosed with Stage 4 Cholangiocarcinoma.  I am  so glad to find this website.  I am overwhelmed right now.  Just trying to take one day at at time.

Re: New member

Dear Martha, I want to welcome you to our remarkable family. You are a quick learner as one of the first lessons IS to take it a day at a time. May I ask you some questions and if you don't feel like answering yet then we can wait. You will find that you have come to the right place and that writing can be very cathartic. We are here to help you in any way we can.
What is your husband's age.
Where is he being treated and have they started anything yet.
Where is his CC located.  That enough for now, I don't want to load you with too much. We all know just how you feel. Martha, we look forward to hearing more, take care of yourself.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: New member

Hi  Martha,

Welcome to the site but sorry you had a reason to join us!  I am so very sorry to hear about your husband.  It's so hard to hear this news about someone we love. 

If you have specific questions or just need some support you are definitely in the right place. 

Hugs,
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: New member

Hi Martha,

I would like to welcome you to this site and tell you that I am sorry to hear about your husband. It is quite overwhelming to hear the news when you are not expecting it at all. Things do get better once you find the right cancer center and doctor. You begin to focus on the fight and making the most of each day. I wish you and your husband all the best. Please let us know more about you and your husband because we really do care.

Hugs,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: New member

My husband was diagnosed in early march--stage 4 as well

if you ever want to "talk" via email even--please feel free to email
dorienn@excite.com

my husband is 44, we have four kids.

the diagnosis TOTALLY stinks!!!! trying to take one day at a time here
as well.

some days it's really really really hard.

Re: New member

Hi Martha,

Welcome to the site. Sorry that you had to find us all and I am sorry also to hear about your husband. But I'm glad that you've joined us here as you are in the right place for support and help and I do know that you will get tons of each from all of us here. Please can you tell us a bit more about your husband and everything else when you fee up to it.

If we can help in any way at all then all you have to do is ask and we'll do everything that we can to help. We can't promise all of the answers but we'll do our best! And should you ever feel like having a good old vent or moan then please go ahead and do that as well as we so know how that can help! I look forward to hearing more from you, and please know that we are here for you and we care.

My best wishes to you and your husband,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: New member

Thanks so much for all the kind words.  I am devastated. I try to be strong but some days I just want to stay in bed and cry.
My husband is 63 years old. We have been married 40 years this May 26th.  His cancer has spread from his biliary duct into his liver.  He is being  treated at Atlanta Cancer Care and has had 2 chemo treatments.  He gets this week off.  He hasn't had any bad side effects so far, for which we are thankful. 
Right now we are just trying to maintain a sense of normalcy but are also making plans as to where we need to be short term.

Re: New member

Dear UKC, the good news is that your husband has no side effects from the Chemo and that there seems to be a plan here. Do you know if this Treatment Center has treated many CC patients?  You might want to keep in mind the thought of getting a 2nd opinion from a major Hospital that is well known for treating CC. If you feel like crying and staying in bed perhaps your Doctor can order a little something to take the edge off, many of our Caregivers do that. What a blessing to have a 40th Anniversary to look forward to. Please keep us posted as we truly care.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: New member

Lainy,
our oncologist is the tops here in Atlanta.  The surgeon at Emory was very pleased we chose her.  She was also my oncologist when  I had chemo 2'years ago for colon cancer. 
My primary care dr,has prescribed meds for me and they are taking effect.  I seem to be more grounded now. 
We plan on taking a trip to our home state to visit family.  I hope this brightened spirits before we begin the next round of chemo. 
After that round, we hope to take a trip to WDW to celebrate our anniversary.  We love it there.

Martha

Re: New member

Thanks Martha, this post was great as you are doing everything just right. I think your Anniversary and trip will be just the RX needed!  I am not with it, what is WDW?

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: New member

Lainy,
Walt Disney World.  We love to vacation there.  It is very HC friendly.  I have severe arthritis and minor heart problems plus I am deaf in one ear.  I use an ecv.  Ron is also has Celiac disease and must stick to a very strict diet.  WDW is a wonderful place for us.

Re: New member

I am such a doofus! Of course WDW!!! And I was a travel consultant for 35 years. Guess my mind just flew away! That will be a wonderful celebration. So many great restaurants that now cater to us folks with problems. Wheelchairs, anything you might need. Heck , if I was going with Teddy I would sit on his lap in the wheelchair and let someone push us "youngsters" around. I am excited for you both.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: New member

Sorry to hear your news. This is a great site. You will gets lots of support and information here. One day at a time and don't worry about tomorrow until it comes!

Re: New member

Hi Martha
So sorry you and your family are going through such a difficult time. My sister ha s stage 4 ICC and is also be treated at Atlanta Cancer Care. She has been on Chemo for 14 months and doing quite well. Good tumor shrinkage and she feels pretty good after about 4 days after chemo. She goes every 3 weeks now. She's not a candidate for surgery. We are very pleased with her care at ACC. Dr Steis has experience with rare cancers. All the best to you and your husband. I love WDW. Hope you guys get to go soon!!! And have some fun and laugh!!!

Suz