Topic: Thank you!
My husband's life was saved as a result of information found on these boards, and for that I am profoundly grateful. Thank you, thank you!
My husband was diagnosed with nonresectable Stage IV intrahepatic cholangiocarcinoma, deep vein thrombosis, and pulmonary emboli in January. We were devastated. Worse, his oncologist at Cedars Sinai really only held out hope of palliative care and was adamant that my husband would never be a candidate for resection. He's only 52! How can this be possible? But one of my husband's close friends found this community and, based on the information shared by other patients, was able to make recommendations about other physicians and possible treatment plans. We needed someone who believed in beating this disease and was willing to stand by my husband in this fight--and mirabile dictu!--we found Dr. Selby at USC. After a 10 hour surgery, my husband's surgical team pronounced him "visibly cancer-free"--and three months and two chemo rounds later, the disease has not returned. A miracle! He's lost 40 pounds, is still on chemo and will likely move to radiation next, but right now, he's in great shape and his attitude is truly inspirational. The chemo (he's on gemzar/cisplatin) causes nausea and fatigue. "I don't get nausea and fatigue," he says. "I CAUSE nausea and fatigue." But despite the toll it's taking on his body, he even played a little bit of tennis today!
I just wanted you to know of the difference you have all made in his recovery, and how much this information has helped us negotiate our fear of the unknown. Of course we don't know what the outcome will be--but we do know that he's much better today, and we are no longer talking about strictly palliative care. Now that he's been debulked we're looking at a very different playing field.
Thank you for helping us get to this point. Let's hope that in five years we can pronounce him cured!