Topic: Clear scan

Hello cc family,

I had my 6 month scan (at the 3.5 year post-surgery mark) and it was clear.  I met my new oncologist (Aram Hezel) and he is very nice.  Does a lot of cellular research on CC.

Thank you all for the strength you give me.

-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

2 (edited by Lainy Fri, 17 May 2013 17:05:13)

Re: Clear scan

Randi,Girl...a root-a-toot-toot! I am so happy for you. You are without a doubt a very special Super Hero! Luv YA! I almost forgot: MAZEL, MAZEL!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Clear scan

Great news Randi!!!

Re: Clear scan

Excellent news!!!!!! smile:)

Re: Clear scan

Wonderful news!!!

Suzy

Re: Clear scan

That's fabulous, Randi!! What relief you must feel...another clean scan!

Willow

Re: Clear scan

so so happy...here's to another 35 years

Take Care
Lou

Re: Clear scan

Great Randi!!!  Can I ask when your next scan will be?

Take care!

Susie

Re: Clear scan

Absolutely brilliant news Randi!!!

Big celebratory hug for you!!

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Clear scan

Randi....the news could not be any better - congratulations and
hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Clear scan

Randi, congratulations! Great news!!

Re: Clear scan

Thanks everyone!

Susie:My next scan is in August, mostly because that is the time period that makes me comfortable.  The Onc said that I will probably only have a couple of more scans and then be released from his care.  scary...

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Clear scan

Randi...Wonderful! Would you happen to know of any statistics of recurrence after a period of 3 years?  You just posted on my 3 year clear posting, and I just reread that you are now 3 1/2 years out and your doctor says only a couple of more scans.  I have never really gotten an emotional handle on the diagnosis so I examine everything from all angles!  Wondering about the statistics this far out...Has your doctor said anything about that?
Thanks!

(I know what you mean by scary..about 3 months from scan I start to feel it's time for reassurance!)  My next scan is 6 months away....

Re: Clear scan

Congrats again on 3 years.
I don't have any real statistics myself.  I wonder if Percy might chime in here.

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Clear scan

Hi,
I think everybody is different, for example I had 3 resections and I just finished with RFA During my  4 recurrences in a 53 month period. However, I think Randi still clear of recurrence after 3.5 years.
She has extrahepaticCCA and I have the intrahepatic kind.
Stats in general shows recurrences with a high % between 50-75% with the distal CCA has the lowest recurrence rate and ICCA the highest. But as you know, some members here  did not have any recurrences after 7 and 15years.

God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Clear scan

Thanx for stepping in Percy!

I don't know the numbers, but it seems to me that most people on this discussion board have had ICC and I am in the minority with ECC (as well as stage 2b).  That is why I hesitate to hold up any of my treatment/outcomes as a model for anyone.  Everyone is different and I would think that survival has factors that we don't even know.

Best wishes!
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Clear scan

I have read statistics for 3 year survival and 5 year survival.  Guess I'm wondering how the statistics go once you've gone 3 years without a recurrence....still hoping that the odds improve with each passing scan....There was someone on last year who had survived 15 years...don't know how many are out there.
I don't know what kind I had!  Should find out!

Re: Clear scan

Yes I do believe it is true that every year that goes by without disease increases your odds of beating it. 

And absolutely you should find out everything you can about your disease, type, staging, involvement/metastasis if any, etc.  Knowledge is power.

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Clear scan

I just want to add my congratulations as well. It's great to read good news when it comes to fighting this disease.

Carl