Thank you for the kind words. Percy, you are right - my perseverance and dedication is all in loving memory of my Jacques. You see. I had two choices when the love of my life passed away - do nothing and be angry that the beast called cholangiocarcinoma took my Jacques, or get involved to try to help find a way to help others facing what I went through. I'm so glad I chose the latter, which all came about from me looking for some answers when Jacques was diagnosed and I found the CCF website. I'm so glad I did, as I have met many wonderful people, Stacie - Marion - Percy - Dawn - Sara - Stella etc., and corresponded with many others over the last 6 years.
Today was a great day. It is so exhilarating to hear all the positive comments and the interest from so many people I met from around the world today. I spoke with people from Brazil, Mexico, India, Chile, Egypt, Spain, Canada, France, Germany, England, Iraq and all across the US. We sure have come a long way from my first convention I attended when very few, if any, attendees even knew about Cholangiocarcinoma. Today, there are so many that have visited our site, referred patients to our site, or are very interested in the CCF. A few people stopped to talk to me and said they were glad to meet someone in person, as they love our site. It has so much information for patients, family members, physicians, researchers etc.
Percy, you are amazing - attending as many sessions as possible. We need to get you a pair of roller skates, as you are all over the place. You are also very dedicated.
If anyone out there is thinking of getting involved, but are unsure. I can tell you from the bottom of my heart that after a long day of spreading awareness - when you put your head on the pillow at night - you will have a true sense of knowing you are making a difference! Do as little or as much as you want - The time you give is time well spent.
Barbara from NH