Topic: Treatment options in Ontario

Hi
I have been diagnosed with cc and am in Bangkok getting treatment as I live here currently although I am Canadian.

They are are unwilling to operate as the mass intersects with a major artery going to the liver and I am thinking of returning home for a second opinion.

Does anyone know of any hospitals in Ontario with any experience or success in dealing cc?

Greatly appreciate any ideas.

I have completed radiation and chemo, have as liver drain and am feeling pretty good all round.

Re: Treatment options in Ontario

Hi cjbenner,

Welcome to the site. Sorry that you had to find us all here and I am sorry to hear what you are going through. But I'm glad that you have joined us all as you are in the best place for support and help, and I know you'll get loads of each from everyone here.

As to Ontario, here is some information that our Marion has previously posted that will be of help to you -

Dr. Jennifer Knox
Address:
Department of Medical Oncology
Princess Margaret Hospital
610 University Avenue 5-210
Toronto
Ontario
M5G 2M9

Phone: (416) 946-2399
Fax: (416) 946-6546

Dr. Laura Dawson, MD FRCPC
Associate professor,
Dept. of Radiation Oncology,
Princess Margaret Hospital
University of Toronto
Toronto, Ontario
phone 416-946-2125
fax 416-946-6566

You might also want to consult with Dr. Sean Cleary (surgeon) at Princess Margaret Hospital.  He has operated on numerous CC patients.

We do have quite a few Canadian members here and I know that they will be along soon to share their personal experiences with you. I cannot as I am in Scotland.

Thats great that you are feeling pretty good all round, that sounds good to me! I know that you will have other questions to ask so please feel free to ask and we'll do our best to help in answering them. And please, keep coming back here and let us know how you get on. We are here for you.

My best wishes to you,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Treatment options in Ontario

Marion,

I searched for Ontario, saw that you had previously posted the above info here on the site so hope you don't mind me reposting it again here!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Treatment options in Ontario

cbenner......welcome to our site.  The fact that you are feeling well is a good sign especially since you have already undergone several treatments.  As you may know, Thailand has the highest occurrence of this disease, globally and quite a bit of research is done in that country.  In fact, the Cholangiocarcinoma Foundation supported research by funding a grant to Dr. Surbpong Tanasanvimon:
http://www.cholangiocarcinoma.org/media.htm
Based on a conversation I had with him and given the project results together with previous data, he believes that liver-fluke associated cholangiocarcinoma in Thailand is different from cholangiocarcinoma in USA in term of their biology.
Treatment options however; (I believe) don't differ much from what is being offered in other countries.  Having said that, dear cbenner, obtaining a second, professional opinion is a good idea. 
It may very well be possible to forward your medical information to a physician/s "very" familiar with this cancer without physically being present. 
Please, keep us posted.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Treatment options in Ontario

Hi Colin,

I'm a caregiver for my wife. She is the one with CC. She had her surgery here in Ottawa at The Ottawa Hospital.

Dr. Fady Balaa investigated my wife's case when her symptoms showed up.

Dr. Richard Mimeault did the surgery. We picked him based on the recommendations from our family doctor and a family friend who is an operating nurse at the hospital.

Both these surgeons are very familiar with CC. They see a large volume of patients with the cancers of liver, pancreas and bile ducts.

I believe you need a referral from a physician to arrange your first consultation.

The Ottawa Hospital - Liver and Pancreas Clinic
Main Line: 613-761-5015
Office Manager: 613-798-5555 ext. 17498
Assistant: 613-798-5555 ext. 13900

Best wishes,
Eli