Topic: Gregg's wife

Hi, I am Gregg's wife, Leslie. Gregg was diagnosed in February. He had a liver resection at Cleveland Clinic. After the resection we were told he was stage II CC with a small vascular invasion. With stage II there is no treatment, only surveillance. So he will have scans every three months for a year and then every four months waiting and watching to see if the cells implant somewhere else. We feel blessed that it was found early but any diagnosis is difficult. This is a wonderful website. It has been a great source of information  for us and a comfort too, knowing we are not alone.  Leslie

Re: Gregg's wife

Leslie....a big, warm welcome to you and a huge thank you for joining in.  Gregg's latest scan shows to be very promising and we are thrilled to share the good news with you both.
Leslie, Stage II disease is about as good as it can be for this cancer.  The majority of long-term survivors on this site are privileged to have received this diagnoses.  Having said that, dear Leslie, I would consider several professional opinions in re: to awaiting the outcome of further cell implementation.  I assume that the vascular invasion prevented surgical resection of the defined area however; you would want to have this confirmed by other specialists, as some are very aggressive with their approaches to this cancer. 
Please stay in touch,
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Gregg's wife

Hi Leslie,

Welcome to the site. Sorry that you had to find us all but I'm glad that you have joined in with us as you're in the best place for support and help, and I know that you'll get a load of both from everyone. I'm sorry to hear about Gregg's diagnosis but very happy to hear that this was caught so early and that he was have to have a resection.

Yes any diagnosis is very difficult to deal with but you are not alone in this, we are all here for you now. If we can help in any way then please just ask and we'll do what we can to help. I do hope that you keep coming back here and please let us know how everything goes. We care.

My best wishes to you and Gregg,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Gregg's wife

Hello Leslie,

I was diagnosed with extrahepatic CC at stage IIb, no vascular or lymph node involvement but some invasion into the pancreas (3 1/2 years ago).  I had a Whipple (Pancreaticoduodenectomy) which removes many things including the head of my pancreas where the cc had "poked into".  Since there was no lymph node involvement the  choice of doing adjuvant chemotherapy was left up to me.  I decided to do it (6 months, 1x week for 3 weeks, 1 week off of Gemzar).  Although it was no piece of cake, I do not regret it since I know I've done everything I can do to fight this cancer.

I would also suggest getting second opinions (as Marion suggested) to make sure that there are  not other options you want to pursue besides wait and see.

The ultimate decision is up to you and your husband, but getting the most information you can can never hurt.

Best wishes to you and your husband Greg.
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Gregg's wife

Hi,
This  link may be of interest to you.

http://www.cholangiocarcinoma.org/punbb … 176#p65176

God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Gregg's wife

Hello Leslie, I am Pat, I had many similarities to Greggs case, I am seven and a half years past where he is now, and he has past a very important milestone. Just live your lives, do the things you always wanted to do as he is able. Don't ever forget that this second chance can last for a while.This challenge will change how you both look at every day and all around you. When I was at the point where Gregg is I was back to work and getting around pretty well. I was divorced when I went through this so he is fortunate to have you.  He is older than I was at the time so he can't be expected to but I hope does as well.Hang in there and focus on your best hopes, god bless you both, Pat