Topic: Are we on the right track?
I must say that I am so very glad I found this site for my wife. It's been an incredible source of information, communication, and compassion.
I still don't know the terminology well so forgive me if I state something incorrectly. We are in our first phase of treatment for ICC (multiple tumors in liver plus lymph nodes). By phase, I mean we are now in the second of the three chemo (Gem/Cis) cycles prescribed. Each cycle being 2 weeks on and one week off.
Overall, I feel my wife is doing OK with the chemo regimen. She started cycle 2 yesterday and today is doing well. Biggest issues; fatigue and then nausea but both under control.
My question/concern is her abdomen is still very distended. At our meeting last week with our Onc, we asked about it. We did not get any actionable response. Her blood work has shown great improvement in all indicators. Her bilirubin level has dropped to 1.0 (from a high of 5). But she is so very extended and cannot function normally. We don't know if this is all tumor related (she does have large tumors) or something else which could be corrected.
Is this what we should expect at this point or should I be pushing for further tests? I feel like something positive is happening, but it is not reflected in my wife's current quality of life. She is not able to do much, yet feels better now than she did a few weeks ago when pain was the major issue.
Thanks for your assistance.
Carl (and Lynn - my wife)