Topic: Update from NIH trial

Hi all,

I just returned from NIH this week. My scans showed minimal growth, like in 1-2 mm in only a couple of tumors in my lungs. Considering I have several tumors in both lungs and I think 4-6 in my liver...that have not grown, I am still happy with this news. We are just watching for now, I go back in the middle of August for next checkup. They have a formula for everything and won't consider it progression of disease until a certain percentage of growth. At that time I could possibly repeat the treatment, depending on the consensus of the doctors, or look for a different trial.

I am still happy with the trial results for me, I only wish that it would work for someone else as well. There is still so much of the unknown. I know for me, not having to do chemo, gave me great quality of life this past year and amazing time with my family. I still don't know what the future holds but I remain optimistic and hold on to my faith. Always thinking of you all, my fellow cc fighters....God Bless.....Melinda

Re: Update from NIH trial

What great news Melinda!!  Congrats.  You must feel so relieved and elated.  I am glad you are able to enjoy life and treatment is holding the CC at bay.

You are a miracle!


Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Update from NIH trial

I am so happy to read your news!! Yay for you!! And hopefully some cheers for some more cc patients soon!

"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Update from NIH trial

So happy for you! Praying for continued healing.

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Update from NIH trial

Hi Melinda,

Thanks for letting us know how things are going and this is excellent news! I am well chuffed for you and hope for further good news when you get your next tests in August. Will definitely be keeping my fingers crossed for you and please let us know how that goes as well.



Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Update from NIH trial

Hi Melinda~

I'm new to this.  I'm wondering what treatment you are on.

Best of luck,