Topic: Chemo beginning

I will begin chemotherapy on thursday.  I will be getting Cisplatin/Gemzar.
My  SIRT radiation did not show any shrinkage of my CC.  I was also denied a referral to get a consultation with Mayo Clinic from my healthcare insurance.  I was able to go on vacation before starting the chemo & had a wonderful 10 days feeling good the entire time.  I still have not had any symptoms except for bad taste in my mouth.  My anxiety is causing me more symptoms!!  Now I just hope & pray the chemo will help shrink this dang alien in my liver!! 
Todays scripture from Isaiah 54:10
Though the mountains be shaken & the hills be removed, yet my unfailing love for you will not be shaken nor my covenant of peace be removed, says the LORD, who has compassion on you.

Re: Chemo beginning

Good luck with your chemo on Thursday. Do you have an advocate through your insurance? Aetna has them. I sicced mine on the problem so I could transfer to Fox Chase Cancer Center. She got it through.
I'm so glad you got to enjoy a vacation! I hope you could put that all-consuming word aside occasionally, and enjoy as much time as you could.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Chemo beginning

Hi Pattimelt,

I love the bible verse. I am sorry the SIRT did not show signs of shrinkage. Sometimes it takes some time to show a difference. In Lauren's case, her Theraspheres didn't really show on the scans that they worked, but once she had surgery all the tumors were dead!! So I will keep the faith that this is your case. I always have hope. Gem/Cis is a great chemo and helped Lauren a lot. Just try not to worry and make yourself sick. I think a positive outlook does wonders. I'm wishing you all the best.

Love,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Chemo beginning

Hi Patti,

I am sorry to hear that your SIRT did not lead to shrinkage as we all hoped that it would. But I am glad to hear you say that you start your chemo on Thursday and my fingers are crossed for some good results for you. Great as well that you were able to get a vacation in before chemo starts too. Good luck for Thursday and please let us know how it goes.

My best wishes to you,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Chemo beginning

I too am sorry that SIRT didn't result in any shrinkage sad  Good luck with your chemo and I am wishing for shrinkage as a result!

-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Chemo beginning

Patty....As far as I remember, you have supplental insurance.  Does this  cover all second opinions or is it possible to consult with a physician from within the UC system?  Great to hear that you have allowed yourself a "ten day vacation" break from it all and are now ready to shrink this as you say: the alien in your liver.  Here is to a huge success coming your way.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Chemo beginning

Pattimelt, praying that Thursday goes smoothly for you. If you want to talk feel free to call me at 330-903-6868.
Hugs
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Chemo beginning

I did very well with my chemo yesterday.  I was there for about 4 hours & came home & felt good.  I was amazed when I woke up this morning & felt so normal!  No pain or nausea!  We actually took a ride & went to the beach for a little walk.  I felt great.  I have been eating quite a bit too.  Right now I am really tired. 
My schedule for the GEM/Cis will be 8 treatments.  2 times in 2 weeks then 1 week off until 8 treatments.  Then will have scans to see if they shrink!

Re: Chemo beginning

Hi, Pattimelt, 3 Cheers for feeling normal, and wishing for it to continue. When you get tired, take a nap, when you are hungry, eat and when you want to take a walk, walk. Remember you are the boss not that little weasel trying to scare off the chemo, which by the way, may surprise the weasel by kicking it to the curb. Wishing for you to enjoy total success as you go along your journey and thanks for checking in.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Chemo beginning

I just finished my fourth round of gem/cis on Wednesday and was even Able to go away for the weekend.  I struggle with going neutropenic and getting fevers and ending up in the hospital as I did for the first two rounds but maybe that extra week off they made me take did the trick.  It's a strange world when you get angry cause you can't get chemo when scheduled.
I hope your chemo goes smoothly and successful.

Re: Chemo beginning

Hi Patti,

That is great that your chemo went well and my fingers are crossed for the rest of your treatment to go equally smoothly! And of course I hope for it to be a great success as well! And it seems to me that a walk along the beach is just the thing to do after a first chemo treatment!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Chemo beginning

fantastic news!  Here's hoping that you continue to feel good throughout chemo.  Just listen to your body and do the things you can do and be kind to yourself.

Hugs,
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Chemo beginning

I will be getting 2nd chemo today!  The worst issue I had with 1st was constipation from the Zofran.  So I took Milk of Magnesia then got diarrhea!! Any suggestions??

Re: Chemo beginning

Hi Patti,

Thanks for letting us know how 1st chemo went and my fingers are crossed that chemo 2 goes well for you! Some links about diarrhea that may be of interest to you -

http://www.cancer.gov/cancertopics/copi … arrhea.pdf

http://www.mayoclinic.com/health/diarrhea/CA00040

http://www.macmillan.org.uk/Cancerinfor … rhoea.aspx

http://www.cancerresearchuk.org/cancer- … ncer-drugs

Hope some of these help and let us know how 2nd chemo goes.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Chemo beginning

Hi Pattymelt,
My sister had the same issue with Zofran. Try bran cereal, fruit, etc and maybe docusate sodium (stool softener) for periodic constipation if milk of magnesia is too harsh of a laxative. I personally try to use diet and hydration as main tools to prevent constipation.  (Easy on the bread, meat, cheese; increase fiber, fruit and veggies plus hydrate).
Thinking of you and wishing you well as you tackle chemo.
Willow

Willow

Re: Chemo beginning

Patty...stool softeners worked well for my husband too.  He used it once per day, 1/2 hour before meal.  He used additional laxitave only if needed thereafter.  Hope this help, Patty.  Good luck with the upcoming treatment.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Chemo beginning

It has been almost 2 weeks since my 2nd chemo.  I will be having 3rd on Thursday.  I was able to attend my grandsons graduation & his grad party.  Last Thursday I started having severe pain in my lower abs.  I knew what it was as I have had this many times & it actually led to finding my CC .  After my 1st chemo I had bad constipation & then was able to control that with stool softeners.  But that 1st bout of constipation has caused me to have a flare up of diverticulitis.  So although I was tolerating the chemo with not much side effect except fatigue I have to deal with this.  My doctor put me on cipro/flagyl antibiotics & have to take them for 10 days.  He said if the pain isn't better in 24 hours he wants me to have an ultrasound.  It is much better today so hopefully by Thursday I will be ok to have the 3rd chemo & not have any constipation!

Re: Chemo beginning

Pattimelt, sorry to hear about the Diverticulitis. Hope you get it under control FAST. I am also so very happy that you got to attend all the festivities for your Grandson. That's terrific! Hoe this next session of Chemo goes as smoothly! Keep up the good work!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Chemo beginning

Pattymelt....we always hope for CC to be the only issue to deal with, but at times, other things can add problems too.  So glad that you have responded well to the medications and on to another, uneventful chemo session.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Chemo beginning

Hi Patti,

Sorry to hear about the diverticulitis. I hope that the meds work for that and deal with it well so that you can have your 3rd chemo session on Thursday. Hope that chemo goes well with no constipation! Let us know how things go with that.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.