Topic: Rough Week - Intestinal Blockage
Hi CC Family,
Over the last week, Jeff has been more nauseous than usual and has had trouble with constipation. Zofran did not seem to help at all. We called the clinic and learned that our ONC was out of town for a few days. The NP or PA suggested that we try Reglan to help with the nausea and constipation. When we went to the pharmacy to pick it up, the pharmacist refused to fill it because of an adverse reaction potential with one of his other meds (Abilify). We called the clinic & spoke with a different ONC who knew nothing about Jeff or his case but suggested that we take him to the ER because it sounded like he was pretty sick. We did.
On Thursday in the ER at our local hospital, they ran a CT scan and discovered an intestinal blockage in the duodenum area. He was hospitalized that night and surgery was scheduled for Friday. He had to be transferred to another local hospital for the surgery and then transferred back to the first one following the surgery.
The GI docs were not sure that they would be able to place a duodenal stint until they actually went in with endoscopy. Fortunately they were able to place the stint and it did open up the pipe which was an answer to our prayers. Alternative treatment options were not good, if they were unable to place the stint.
Jeff's disease has progressed to the point where tumors on the outside were compressing the digestive track in the area of the duodenum which was what was causing the occlusion.
Since Jeff was in the hospital on Friday when our next PET/CT scan was scheduled up at UCLA, we could not have that test done. Unfortunately, we found out enough with the CT scan to know that we are in some trouble here.
He was discharged from the hospital this afternoon because he was tolerating the liquid diet (and then soft food lunch this afternoon) well enough to go home. From my perspective, being healthy enough for discharge was the best Father's Day Gift.
We plan to follow up with our ONC up at UCLA next week as well as the local GI docs who did the procedure. For now, he continues with the soft foods diet - mostly soups and pureed stuff. Does anyone have menu suggestions?
As is typical for Jeff, he charmed the nurses and medical staff in both hospitals. He had a steady stream of family & friends come visit for which we are most grateful.
Please keep our Jeff in your thoughts and prayers. We are hoping for a better week.
Bob & Nancy