Topic: first appointment with the oncologist-left with some hope
Went to the appointment with mum and dad and i must say i walked away from the meeting feeling that mum was listened to and that he believed in my mums case. Dad took it much better than i thought he would. I am so proud if my mum and dad and its great to be at hone with them for a couple of days. After speaking with the oncologist i feel that realistic hope has been given.
I asked him whether further testing shoukd be carried out before embarking on a treatment. As the diagnosis has been made in the absence of a biopsy. Inconclusive brushings were tsken. They based the diagnosis of cc on the length height and shape of the stricture and raised tumour markers. The oncologist agreed that he feels the results strongly show cc but he said that it would be in mums best interests to be referred to a specialist team r at the royal liverpool hospital where they have specialist ercp with spyglass and one with an ultraspund attachnent to detect small tumours and have a good look around and repeat ct scans.he said that at the moment he feels that the cancer -if it is that-may be in an earlt stage. He said that whilst mum cant have surgery due to her health he said that he would want mum to be referred to either liverpool or manchester-christies where mum could be offered internal radiotherapy and he mentioned a new treatment called photodynamic therapy. He was very realistic and said whilst it cant be cured he feels that mum shud be offered the chance to be treated under a specialist team abd be offered a combination of therapy.
This is the best ive felt since this journey started. I know we are not out of tge woods but it is uplifting to know that they feel mum should be given a good shot at getting as much info about the condition and being in the best place regionally to get treatment