Topic: Newly Diagnosed
I just learned last week my 81 year old dad, who happens to be in great shape and health, has cholangiocarcinoma. It has been a three week journey so far. The initial problem that brought him to the hospital was severe pain. They thought it was food poisoning, then something gall bladder related. They did an ERCP and put in a temporary stint. He then went onto the U of Minnesota and had a endoscopic ultrasound and another ERCP to put in a more permanent stint. The EUS showed cancer including in two lymph nodes. There is also a vein involved(can't remember name.) We met with oncologist connected to U of MN and said would do chemo once a week for 3 weeks and be off the 4 week. Would do 3-4 cycles and was going to use Gemcitabine, trade name Gemzer. She said he had about a year to live and surgery was not an option. Left that appointment quite numb.
We went onto the Mayo in Rochester, MN a few days later. Met surgeon who is expert at Mayo for this type of issue. She said surgery not an option right now, but wants to start chemo treatments. One week on, one week off. She then offered some other options. I left with some hope unlike earlier experience. Do not know what type of chemo yet as we go back to Mayo on Thursday this week to meet with oncologist.
As you can see from my lengthy post, I am very scared and sad. Anything you can share to provide insights, encouragement, hope would bless me beyond words.