Re: Hello

i'm so sorry!  most days i just want to punch this #*(#&* cancer in
the face!!!!

sending love your way!

Re: Hello

Dear Suz,

Iam so sorry to hear about your sister's difficulty with getting chemo. You are doing everything you can for her just by being there for her and showing her you love her. I think you need to have a discussion with her doctor and weigh the pros and cons of chemo. Comfort is the most important thing for your sister at this time. I will keep you both in my prayers.

Love,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Hello

Dear Suz,
Thinking of you and your dear sister,
Love Willow

Willow

Re: Hello

Dear Suz,

I am sorry to hear of the troubles that your sister is going through right now. I know that this is a very tough time for you all and I hope that your sister has a much better day today. Please let us know how things go and know that we are here for you.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Hello

Thank you so much for your kind words and prayers. My Sis seems to very suddenly be getting sicker. The cancer seems to be growing very fast . After months with no pain she now has to take a narcotic for the returning pain in her side. And still has not been able to increase chemo because of bloodwork. I know the Dr is just trying to help her feel better with the chemo but I would say we are coming to the end of the this fight soon. Watching her fear and emotional and physical suffering is so hard. We are both so scared for what's coming. Thanks everyone for being here for all of us. So many broken hearts yet so much love and hope. You are all an inspiration to me.
Suz

Re: Hello

Dear Suz,

I am sorry that your sister has not been able to resume her chemo and that she is deteriorating.  There is still much that can be done to prevent your sister from experiencing pain and other symptoms that she might have.  It might take some adjusting, but the narcotics can be increased - there is no need for her to be in any pain. 

Do you have any support in terms of emotional and physical care?

Clare

In the stars now . . . .

Re: Hello

Dear Suz, Has anyone talked to the ONC about bringing in Hospice? Hospice does not mean the end right away but can help to make your Sister more comfortable. I would def have a talk with the ONC and if he/she feels the same the ONC can order them to come visit and you are usually set up in 24 hours, bed and all. The day they came to us Teddy felt better as the hospital bed made it easier for him to get up and down. What drug do they have her on for pain and is it working? Is she eating ok? Hospice usually starts out with visits 1 - 2 a week and increase visits as needed. You might want to think about it as the bottom line is comfort. Wishing you and your Sister the best.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Hello

Suz,
That is such a difficult situation... I can relate as my sister was turned away from chemo many times for the same reason. Wondering why onc doesn't change to a different chemo drug. Something not as hard on the blood cells. Xeloda is what my sister is on now and its easier on the platelets. Many do a bimbo of Xeloda with another chemo drug.
Please let us know what the Dr says and which approach you're taking. Sincerely, Willow

Willow

Re: Hello

Dear Suz,

I am very sorry to hear this news about your sister. I was there with my dad when things progressed and I can feel the pain that you are going through right now. I agree with what Lainy says about hospice and they will be best placed to deal with your sisters needs. My dad went through hospice care and I have nothing but great things to say about the care that he received from them.

Pain and other symptoms that can arise will be able to be controlled best with the hospice team and I know that they will be of great help and support to you as well. You know that we are all here for you as well always and will do what we can for you. I know that this is a frightening time and that you are scared, so please come here as much as you want. We are here for you.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.