Thanks for your encouragement.
As you know Helen, each of us,patient or caregiver, are forced into a situation whether surrender to the dismal outcome of this disease or get up and have enough courage and faith to research and fight for this disease which the odds of success are minimum at best at this time.. Don't get me wrong, I am just the same as other patients, discourage at times;hopeless in many occasions; afraid ofthe outcome of this disease all the time;worrying for my family and bite my tongue at times to control my emotions and tears. I am no hero or warrior of any kind. i just choose not to surrender ,that all.
By the way, if the chance arise and have to chance to see Dr. Valle or other specialist ;please let them look at my Treatment Hx especially after my 2nd resection, I was on Xeloda for 18 months; the first 4-6 month or so, I was on 1500mg BID, but after that ,diarrhea occur more than twice daily(still of less than Grade 1 in toxicity profile without other side effects except fatigue). then decrease to 100mg in am and 1500mg in pm as maintenance till 3rd recurrence in June this year.
Through your help,if I may, I want to let them know about my situation;Since Dr.Valle and colleague 's adjunvant Xeloda trial is still ongoing,and will report their findings next June. I wander what is their opinion and comment on my case of using Xeloda 4-6 month as standard adjuvant treatment and followed by 12 months of Xeloda maintenance treatment and I still have my 3rd recurrence of intrahepatic cholangiocarcinoma . Is my dose of Xeloda is too low to begin with (should be 1250mg/M2? instead of 1000 mg/M2;My BSA is 1.7M2 and my CRCL is always around 50); or in Dr.Valle's trial, Do they only expect to lengthen patient's survival population from 18-22% is the major goal and treat patients as recurrence coming back with chemotherapy or targeted therapy on the treatment group as compare to the controlled group .
Thanks for your encouragement and help.
Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.