Re: TO all Moderators on this Board and all my Friends Here

Hi, Eli,
Thanks for you to put me in your thoughts even through you have to care for your wife and kids,research for cure  and at the same time to work in order to support your family. It is not easy, but you also do far more than just comforting people, you are also contribute to this message board in the way that I will depend and trust on your judgement. Your detail and meticulous analytical mind is of no equal; your passion for finding the best treatment  for your wife and pressed your doctor in a socialized medical health system is admirable .
Eli, thanks for your friendship and contribution to this board. I am sure I will continue to find answers for my problem and I will report and share every step on this message board. Take care and say hi to your wife for good luck.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

27 (edited by PCL1029 Thu, 04 Jul 2013 09:41:26)

Re: TO all Moderators on this Board and all my Friends Here

Hi, Helen,
Thanks for your encouragement.
As you know Helen, each of us,patient or caregiver, are forced into a situation whether surrender to the dismal outcome of this disease or get up and have enough courage and faith to research and fight for this disease which the odds of success are minimum at best at this time.. Don't get me wrong, I am just the same as other patients, discourage at times;hopeless in many occasions; afraid  ofthe outcome of  this disease all the time;worrying for my family and bite my tongue at times to control my emotions and tears. I am no hero or warrior of any kind. i just choose not to surrender ,that all.
By the way, if the chance arise and have to chance to see Dr. Valle or other specialist ;please let them look at my Treatment Hx especially after my 2nd resection, I was on Xeloda for 18 months; the first 4-6 month or so, I was on 1500mg BID, but after that ,diarrhea occur more than twice daily(still of less than Grade 1 in toxicity profile without other side effects except fatigue). then decrease to 100mg in am and 1500mg in pm as maintenance till 3rd  recurrence in June this year.

Through your help,if I may, I want to let them know about my situation;Since Dr.Valle and colleague 's adjunvant Xeloda trial  is still ongoing,and will report their findings next June. I wander what is their opinion and comment on my  case of using Xeloda 4-6 month as standard adjuvant treatment  and followed by 12 months of Xeloda maintenance treatment and I still have my 3rd recurrence of intrahepatic cholangiocarcinoma .  Is my dose of Xeloda is too low to begin with (should be 1250mg/M2? instead of 1000 mg/M2;My BSA is 1.7M2 and my CRCL is always around 50); or in Dr.Valle's trial,  Do they only expect to lengthen  patient's survival population  from 18-22%  is the major goal and treat patients as recurrence coming back with chemotherapy or targeted therapy on the treatment group as compare to the controlled group .
Thanks for your encouragement and help.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: TO all Moderators on this Board and all my Friends Here

Percy just want to note that I will not call you a Hero of Warrior anymore even though I think that. How about instead I will call you a CHAMPION!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: TO all Moderators on this Board and all my Friends Here

Dear Percy

It would probably be best if you email Prof Vale with your info and see what his comment is ...

If you would like to do this, let me have your email address and I'll give you his contact details.

Helen xx

Re: TO all Moderators on this Board and all my Friends Here

Percy, you have email.

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.