Topic: Stay the course. Update from our consult visit.
Our visit to Memorial Sloan Kettering on Friday was good, not great. The doctor was very pleased with Lynn's progress. He said a few times how much better she looked and how important it was that she was feeling better. He noted clear signs of reduced size of her liver tumors. He also agreed with the plan of more rounds of Gem/Cis treatment. We were glad about this part of the discussion.
What was a bit disappointing was our discussion regarding other options, trials, etc. He did not think Lynn was a candidate for their own trial with the hepatic pump because of the lymph nodes. Even though the inclusion info suggested a person with affected lymph nodes could still be considered. I am planning to contact the sponsor next week.
A second question regarding immunotherapy also led nowhere as he felt it had not shown positive results for GI/colon cancers. He was polite during all this and said we could look at these types of options down the road if chemo stops being effective. Then he said the dreaded phrase, which we all picked up on. He said this is about "quality of life". It felt to all of us that he was fully focused on the present. However, I can’t stay in the present. I need to be looking for what’s next. I believe we all had high expectations, maybe too high, so this discussion just didn't feel good.
Nothing has changed with this visit. We are still moving forward with three more cycles and hoping for continued improvement. This emphasizes even more to me that we drive our own plan as much as possible and look to these doctors for affirmation, consults, and administration, but not as our advocate. That's our job.