Topic: New member
Hi, my name is Lizzy. My 56 year old Dad was diagnosed cholangiocarcinoma (distal bile duct carcinoma) at the end of May. I am living in CA but my parents are from Beijing, China. He had all treatments in Beijing.
I have been reading posts several days and get so much valuable knowledge and information. I wish to get your advice and help regarding my dad's post-surgery treatments. Thanks in advance!
Here is the treatments my Dad has received by far:
06/04: Whipple surgery
06/21: Discharge home with one abdominal drainage tube
06/26: One-day fever
06/26-07/02: Inpatient, diminish inflammation, blood test, CT scan
07/03: Remove the abdominal drainage tube
07/19: Blood test, all tumor marker indicators (AFP, CEA, CA199, CA125, CA153) are in standard range, except the Ferr is relatively high (577.32).
07/19-now: Inject thymopentin
Pathology (personal translation):
Distal bile duct poorly differentiated adenocarcinoma, 2*1*0.6 cm. Cancerous tissues invade throughout the bile duct wall layers, perineural invasion, invade surrounding pancreatic tissues, not involved duodenum. No cancer at duodenum incised margin, pancreas incised margin, common bile duct incised margin. Common bile duct cut edge epithelial displays adenomatous hyperplasia along with medium-severe atypical hyperplasia. No cancer metastasis at peripancreatic and peribilliary lymph nodes (respectively 0/1 & 0/2).
Our surgeon strongly recommends us to visit an oncologist so as to receive chemotherapy. I have consulted with two specialists. One advised to take chemo & radiotherapy together. Another specialist thinks cholanglocarcinoma is not sensitive to chemotherapy and there is no need to take radiotherapy either. So, we are very confused by their suggestion. We are wondering is it necessary to take chemo or radio or both therapies? Is it efficient to take the treatments after surgery?
Besides, I have red some academic articles both from Chinese and US journals. It is said the 5-year prognosis of poorly differentiated is 0. It is so horrible, scared, desperate, and hopeless! Anyone knows any exception? We look forward to a miracle!
So many questions! Thanks for any response!