Re: Off to Germany for treatment

Hans,

Thanks for updating us on what is going on with Kris.  I am thinking of you both and hope things go as planned.

Lots of Love & Hugs for Both of You,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Off to Germany for treatment

Thanks for the update, Hans.  Prayers for successful treatment coming your way.  Kris is such a warrior!

Re: Off to Germany for treatment

Thank you for the update on Kris Hans, please pass on my best wishes to her. Loads of positive thoughts coming over yours and Kris's way.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Off to Germany for treatment

Thanks Hans
Good luck in Germany..........................Gerry

Re: Off to Germany for treatment

Hans thanks for the update. You are both in my thoughts and prayers.
Jamie

Re: Off to Germany for treatment

My mom is recently diagnosed with stage IV so I was considering this option as we have no other choice , any feedback about the hyperthemia ??

32 (edited by PCL1029 Sat, 20 Jul 2013 22:33:41)

Re: Off to Germany for treatment

Hi,
Will you tell me how old is your mom? ,any other health problems? How did she find out she had cholangiocarcinoma (CCA)?  By accident or because of pain etc?
Is the tumor inside the liver only,or both inside the liver and the bile duct, or the tumor is only in or alongside the main common bile duct?
How big is the tumor and any lymph node or metastasized to other organs?
Ca19-9 result; bilirubin =?; has any stent put in for bile obstruction?
It makes a difference in treating the cancer.
Who told you you have no other option? Is the oncologist ,or the radiologist or the liver surgeon ? Or all said no option?
I am a patient of this disease for 53months and I believe every patient deserve his or her chance to live . I make 2nd and/or 3rd consult on surgery,radiation and oncology and compare my options.
I do not think hyperthermia is the proper and only treatment for CCA.and if you notice this message link was almost THREE YEARS old.
So this can tell you something about hyperthermia whether still a popular
treatment or not.

One exception, if you use local interstitial  hyperthermia such as RFA or microwave ablation for the liver, if the location  and sizes  of the tumor allowed , it can achieved good outcomes., but in general, I do not think that is what you mean when you use the term hyperthermia .
What type of hyperthermia you are talking about? it may give me a better picture to answer your current and future question.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Off to Germany for treatment

My mother did not enter the hospital at all until she got yellow skin and itching just before 6 weeks , we thought it had to do with gallbladder initially as ultrasound showed gallstones but later the MRI showed the cancer and the result below :
"
It is not an operable Klatskin's tumor. It is a Stage IVa (T4N1) tumor by TNM staging. It is not operable as the tumour involves both the right and left hepatic artery and the main portal vein. In addition, there are nodal spread to the celiac axis and the aortocaval nodes.

The patient is best served by metallic stenting of both the right and left hepatic ducts. Subsequently, palliative chemotherapy can be considered as the patient is about 59 years of age.
"
since then I am consulting all cancer centers worldwide I can reach and non of traditional ones offer more than placing stents which is already done and replaced after one month because it was blocked.

Any ideas or thoughts would be highly appreciated.

Re: Off to Germany for treatment

ghannam80,

You may not have noticed, but this discussion was posted several years ago.  You may want to repost this in the introductions section as I think it will get more attention and more responses.

Other than to get more opinions which it looks like you are already doing, I don't have any suggests at this time, but want to welcome you to this wonder family of caring people who will try to help in any way that they can.

Glad you have joined us, but sorry you had to.  Hoping for the best for your mom and that you can get some answers and some help for her.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Off to Germany for treatment

Hi,
Replacing "Plastic" stents every 2 months is not uncommon here in the States .
Metal stents may last between 6-18 months in general.

In your mom's case,systemic chemotherapy like Gemzar+cisplatium or 5FU+ cisplatium will be a start because  the tumor involves both the right and left hepatic artery and the main portal vein. In addition, there are nodal spread to the celiac axis and the aortocaval nodes. ; GEMOX or FOLFOX  may be a better choice if the kidney function is of concern. it will be all up to the oncologist to decide after the lab work are done prior to chemotherapy each time.
Sometimes the chemotherapy will shrink the tumors enough to allow more   choices  of treatment down the road.
59 years old is young and should be treated aggressively if no other health problems involved. But it is all up to your mom to decide since this disease is difficult to treat and the ups and downs like a roller-coaster is not for everyone easy to accept both emotionally and physically.
There is currently no effective treatment for this cancer except may be surgery,but as you can see, it is a relatively comparison only. i had recurrence and have surgery twice ;but it still come back for the third time.
Keep up your knowledge on this cancer is a good idea to allow you to know what other options you can have.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

36 (edited by marions Mon, 22 Jul 2013 18:58:41)

Re: Off to Germany for treatment

ghannam80.....welcome to our site.  I suppose you had forwarded all medical records to cancer centers in Europe.  Had you mailed the actual scan disk in addition to the physician reports to other cancer centers?  What chemo regimen has been recommended? 
Additionally, in your country what does palliative care entail? I am not a doctor, but a previous caretaker and I advocate for those touched by this disease.  Therefore, I would like to mention that progression of Hilar Cholangiocarcinoma is  driven by the obstruction, hence, some physicians may prefer to perform bypass surgery. You might want to ask about this.  Hyperthermia for cancer treatment has not been reported often on this site therefore, information might be sparse.  I did however; pull up these links:
http://www.cholangiocarcinoma.org/punbb … hp?id=4337
http://www.cholangiocarcinoma.org/punbb … php?id=273
http://www.cholangiocarcinoma.org/punbb … hp?id=2579
http://www.cholangiocarcinoma.org/punbb … 53&p=2

http://www.cancer.gov/cancertopics/fact … perthermia

  Please keep us informed - we care.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER