Topic: Day 1 for IMRT with Xeloda

Hi everyone, (is this the right place to post?? if not please let me know)

just to give a little update on my wife treatment.

She took 3 Xeloda (500mg) right after breakfast... seems everything find.

Then 6pm (due to full booking, might change to noon next week) we went to hospital and she did the IMRT. only took like 10min for her to walk in and out of that huge door.

we arrived home around 7pm and she said shes tired and went to took a nap.

8:30pm she woke up and we have dinner.. she ate only half of normally did..

After dinner around 9pm she start feeling nausea and vomit. but she said she felt much better and took the night pills 2 (500mg) and went to bed at 10pm.

conclusion for day1 : Xeloda seems ok for her.. she didn't feel weird, but after IMRT she looks tired and felt nausea.

lets see what happen on day 2.

Re: Day 1 for IMRT with Xeloda

Hi Hugh,

Thanks for letting us know how day 1 went for your wife with her new treatment. It sounds like it went well for her and my fingers are crossed that day 2 and the coming days also go smoothly as well. Remember to keep us updated on everything and yes, this is certainly the right place for you to post!

My best to you and your wife,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Day 1 for IMRT with Xeloda

Hugh that is really great news considering. I am hoping that as she more used to the program it will be easier on her, but she should definitely let the ONC know if the side effects continue. Much good luck to you both!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Day 1 for IMRT with Xeloda

Hugh....Are they not giving your wife anything to prevent nausea?
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Day 1 for IMRT with Xeloda

hi everyone..

sorry for late update, been busy with taking my wife to hospital everyday for the IMRT and start packing for moving... yes we moving next week to another apartment (that's becoz of Chinese thing called "Fung Shui") and hope that will help my wife recovery

well Day 6 today, no need the IMRT just Xeloda for today and tomorrow.

She felt nausea and headache from day 1 after taking the Xeloda.. so start from day 3 she took Zolman and that help a bid.

She usually have that IMRT around 5-6pm and seems like everytime she get on the car after that she fall asleep.  other than that she felt pain again at where she did surgery. But the Dr. said that's normal and ask us to keep on going until the next Friday for reassessment.

She sure loss appetite since the surgery, and now even worst. she only can eat 1/3 of what she can be4 surgery, and her weight drop to 100lbs, ive already force her to drink "Supportan" between meals so that her weight can hold above 100lbs.

I really worry that can she make it through this 5 weeks treatment.

Re: Day 1 for IMRT with Xeloda

H Tze, sorry that your wife is having a hard time with her side effects from the treatments. I hope the move helps to bring her some comfort. As for her not eating, you might try not giving her big meals but rather have her 'graze' all day. Nothing big. A piece of fruit twice a day, soup as often as she wants it. Even just plain buttered rice. Nothing fried or fatty. You might ask the ONC about a nutrition drink that could take the place of a meal. We have a good one here, Carnation Instant Breakfast, and it has all the nutrients one needs for a whole day and can be had in place of each meal. I am hoping for her to be able to get through this next week, she sounds like a pretty strong lady! Good luck on the move and thanks for the update.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Day 1 for IMRT with Xeloda

Hi,
I really think  you do not need to concern too much about the discomfort you wife has now; fatigue,lost of appetite, nausea and some pain and fever is expected.
Make sure her fever is alomst the same every time you take her temperature, and large spite >101or 102 should inform the doctor for consult, give Acetaminophen  will help both pain and temperatureand  hydration is important too.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

8 (edited by H Tze Wed, 03 Jul 2013 12:56:45)

Re: Day 1 for IMRT with Xeloda

sorry for the late reply.. thanks Lainy and PCL for your advice.

we went to see the doctor on the 2nd July for check up and mainly due to lack of "ondansetron", the time we pick up the Xeloda Dr. gave her 6 tablets just in case, but then on the 30th June, she run out. and the 1st July is HK holiday and she really needs it, so I went to a local drug store and found 1 box of 10 tablets by gsk. anyone knows how much will that be??? (answer at the end)

Also she felt some pain around the surgery area, which she don't have be4 the treatment, and end up the Dr. said that's from the Liver, but that normal from the IMRT???

So this time the Dr. gave her 30 Tablets Apo-Dimenhydrinate and 10 tablets of Ondansetronfor the nausea, 60 tablets combizym for the lost of appetite,  then 14 tablets Arcoxia for the pain, and with the consultation fee total $165 USD.

Seems like she felt much better for the passed 2 days....



now 1 box of GSK Ondansetron 10 tablets from local drug store... $205 USD!!!!

I feel like Im a stupid now... sad

Re: Day 1 for IMRT with Xeloda

Hi,
Money is not the point and never should be in the calculation of  treating cancer; but I do understand where you come from and why you mentioned about it.
If I may, as in my own case , millions or more  will not buy me one more day on earth if is not by the Grace of God to allow it happens.
I always know the extension of my life is not depending on what I did,do or will do to the community,such as this one butonly by the Grace God dispenses to me.
God bless,

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Day 1 for IMRT with Xeloda

Yes since the 1st day my wife diagnosis, I already got the same feeling about money is not the point anymore.. but just to point out that there are people out there give no mercy, they will try to rip u off no matter what... some even will sell fake drugs or Vitamin saying it will cure cancer...

Re: Day 1 for IMRT with Xeloda

Hugh, you are so right. While some vitamins are good they are not going to cure CC. You really have to listen to your gut and Google as they usually won't steer you wrong. How is your wife feeling now?

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Day 1 for IMRT with Xeloda

hi everyone.. i'm back.. its been a real tired week for me as I need to move apartment all by myself, plus I need to take my wife to hospital for RT everyday. Really got no idea why we got some many things for 2 person, it took me 1 week to unpack everything.

Well, day 19 for IMRT (5 days a week) and day 16 for Xeloda (14days on and 9 day off due to blood report delay) She seems ok with the treatment.

RT: skin problem gone after using radiagel, pain problem is ok after she took Arcoxia, but she start having stomach pain the last 3 days, but after she ate something she felt better, but still should call the doctor tomorrow and ask.

Chemo: Fatigue.. need to sleep in the afternoon for 2 hours at least. Nausea...  but didn't throw up after she took that ondansetron.

she did a blood test after 14days of chemo, the result seems pretty good, PLT drop from 235 to 156 but still ok to keep going with Chemo...

Dr. also expect she can go on with the adjuvant therapy after finish this set with 1 week holiday. Which planned on Aug 5. shes planning to use Oxaliplatin (Eloxatin) plus Xeloda, 3week for a set and total of 3 sets.

Re: Day 1 for IMRT with Xeloda

Hello Hugh and thanks for the update. Sounds like your wife is doing best as can be expected but I am worried about you. My goodness you have a lot on your plate right now. How does the new apartment feel? Glad to hear your wife is doing OK and that they have most of her effects under control. What is good is that the DOC seems to have a good plan. So let's hope his plans and the new apartment make her feel better soon. Please do keep us posted and hope you enjoy your new apartment.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Day 1 for IMRT with Xeloda

My piece of advice for anyone undergoing radiation is to ask your Dr about something for acid reflux and ulcer prevention like a proton pump inhibitor!!
I went on one the last few wks of treatment and wish I started it on day one.

Take care!!
Susie

Re: Day 1 for IMRT with Xeloda

Hi Lainy, Thanks for your concern, im good, although I loss some weight and really tired, but still I think it worth it... new apt is good.. just need to spend almost 1 week for clean up and fixing things be4 I move in, the previous tenant really don't know whats called cleaning... the kitchen is really a mess... those grease on the cupboard and exhaust fan are dripping oil... the washroom is like walking in to dark room.. so I have to change those lighting as well... becoz the owner is my relative that's why I got a special discount rent and I willing to those cleaning and fixing. My wife is really happy with what I've done, and that's what matter.

Hi Susie, yes my wife start having the problem Monday, so today I ask the Dr. she said the dosage did gain a bid this week and that's why she got the problem, she ask my wife to take Gaviscon and Pantoloc 40mg, and my wife really did felt much better tonight.

Re: Day 1 for IMRT with Xeloda

Hi everyone, just a little update about my wife.
She finally finished her 1 set of treatment: 25 shots of IMRT and two 14 days Xeloda.

Her stomach pain seems to be a big problem now... she cannot eat much, and she throw up right after, her pain seems to be non stop for whole day.

she start losing faith and self confidence, she don't want to meet people, and scare to look at people into their eyes, she admit that she don't want people knows she got the sickness... she even cry to me and saying she don't want to do the next set of chemo. 

Somehow I did have a thought of letting her to choose, but l calm her down and ask her to wait till the next Dr. meeting then we will decide by then

Re: Day 1 for IMRT with Xeloda

Dear Hugh, I am so very sorry to read this latest post. If she does not feel better after today I would call the ONC tomorrow and not wait for the next appointment. Make sure at the next appointment to tell the ONC how she is not mentally doing so well. Gosh I wish there was something I could do for you both. The best right now is to send you my Prayers and thoughts. Please stay in touch.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

18 (edited by PCL1029 Tue, 30 Jul 2013 22:04:38)

Re: Day 1 for IMRT with Xeloda

Hi,

I think after a week of chemotherapy break,she will feel better. The next 3 cycles of Xeloda+oxaliplatin starting on August will not be as bad as the chemoradiation she went before.
Of course, to finish the entire treatment plan including the next 3 cycles of Xeloda+oxaliplatin will at least ,if recurrence occur, you will know that you had try this treatment before and move on to other new agents instead.
Usually the oncologist will prescribe pre-meds like Emend ! A 3 day supply of anti nausea/ vomiting agent along with dexamethasone to less the N/V feeling before,during and afterwards of each cycle of treatment.

It is also Try to get doctor to prescribe antidepressant to help the mood and sleeping( Xanax or lorazepam will do the job well)
You do the right thing to calm her down. Good luck with the next treatment cycle.

God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Day 1 for IMRT with Xeloda

Thanks Lainy and Purcy, ill keep that in mind about those pre-med this time. we will go to see the Dr. tomorrow morning about her stomach problem, hope the Dr. can fix that problem and she can start eating again soon...

1 question is can this holiday before the next 3 cycles be a bit longer (its only 5 days in between)?? I really want her to get the stomach problem fixed before she start another set.