Topic: Spouse recently diagnosed
Hi, my name is Kris and my husband was recently diagnosed with hilar CC (Klatskin's tumor). We were very lucky in that it was only about 6 weeks from first acute symptoms (thought it was his gall bladder) to his surgery June 4th. We were blessed both with some accidents (back pain with no cause that us landed us in the ER and a CT scan) and some heads-up doctors that sent us onto the surgeons. He had a 14 hour surgery to re-sect out the tumor along with just a little less than half of his liver (Roux-en-y procedure). His lengthy surgery was related to a previous exploratory laparotomy and splenectomy years ago as a teenage for Hodgkin's lymphoma. Out docs have been very positive and have never talked about prognosis (which I appreciate since it makes no difference to me as every cancer is unique to the person). It was a moderately differentiated adenocarcinoma with one out of seven lymph nodes positive and per the surgeon clean wound margins after re-secting out the tumor
He is now fairly well healed and starting chemo in a little over a week. We had a little set back due to a Klebsiella sepsis a couple of weeks ago and we are just waiting for blood work to come back clean. Chemo will be every two weeks of cisplatin and gemcitabine which the oncologist says they are having very good luck with.
It has been wonderful to find this site and have people who understand what you are going through. This is such a rare cancer that you spend so much time explaining to people what it is that it almost drives me nuts. Most people seem to think it's some sort of liver cancer. And I am a nurse which means I always seem to know a little too much so it makes it harder to deal with sometimes. (One of the docs said we were lucky I was a nurse but sometimes I wonder about that).
And just to add a little bit more stress to my life (if this isn't enough) my twenty year old son was diagnosed with thyroid cancer within days of my husband's diagnosis. We are not three weeks out on his surgery.
Thanks for letting me share my story and fall everyone that shared theirs. It is so good to not feel so alone.