Topic: new to site, looking for support
I was diagnosed with stage 4 cholangiocarcinoma on March 4, 2013. I have been getting treated with Gemcitabine and cisplatin (3 times a month) until the cisplatin started causing hearing damage. I will now be getting carboplatin instead.
Overall, I'm tolerating treatment well. I feel good and have gained 15 pounds, but I'm wondering if I should be doing something more. I'm just curious if anyone has had any success with alternative treatments or more aggressive therapies.
I'm also feeling a bit isolated. There are no support groups in my area that are suitable for me. Wondering how I might connect here or on another website with local people willing to meet face to face in the Philadelphia / South Jersey area.