Topic: Intrahepatic Cholangiocarcinoma
First I must share that when I started writing on this site I altered a few details about my story. Reason being I was afraid that my local doctors would discover I was second guessing them but since we sort of left them it no longer matters. So I will start by telling you my MOM's story (not my sister's) My mom age 64 who by the way is the healthiest person I have ever know AND who is a marathon runner was diagnosed with intrahepatic Cholangiocarcinoma. We found out during a routine physical. She had NO symptoms other than a little fatigue. The blood tests came back with elevated liver counts and were done twice. She was not yellow or Jaundice, does not have hepatitis or cirrhosis . She had a 7cm tumor growing on her liver. Trying to keep this story short is hard so if I miss details that any of you need to know just ask I am happy to share anything you would like to know. Through this forum, I found 2 users who's story caught my attention (Wayne's and jathy's) it is because of those 2 kind amazing people that I sit here in the ICU at Barnes Jewish Hospital with my mom after Dr. Chapman removed her tumor (which we were told by 3 doctors...one of which was from Dana Farber that the tumor was inoperable) I am happy to report that so far so good! I WANT PEOPLE TO KNOW THAT THIS CANCER IS SUPER RARE AND THIS IS THE HOSPITAL TO GO TO AND DR. CHAPMAN IS THE DOCTOR YOU WANT!!!!!
The other option was chemo which we know does not work well with this kind of cancer offering her a year or two if we were lucky. Yes it is risky but the alternative stunk so we took the risk and am so glad we did.