Topic: Update on our son, Jeff
Hello CC Family,
We haven't posted on Jeff in a while. His last PET/CT in the end of June was bad. Disease has progressed & Taxol was ineffective for Jeff. Our ONC put him on Tarceva. He has developed the bad facial rash that is typical for this drug.
He has lost a lot of weight (& didn't have much to lose to start with). Get's pretty fatigued. Still does not seem to need pain meds. Not very much ambulation. Most waking hours spent in chair or wheelchair. He has just started to develop bed sores. Nancy and I are trying to manage this new challenge.
He still wants to go in to work & is able to get in most weekdays or 1 to 3 hours. Again his employer has been unbelievably supportive throughout this process. Jeff continues to amaze us with his positive attitude.
Next PET/CT in a few weeks hope & pray for better news.
Please keep our Jeff in your thoughts & prayers along with everyone else in this very special CC Family.
Bob & Nancy