Topic: I was diagnosed with cholangiocarcinoma Jan. 14, 2008
I was diagnosed with cholangiocarcinoma Jan. 14, 2008. Finished radiation & chemotherapy given at same time May 1. I did very well with very few of the side effects that some people experience. To have a C-scan to see just where I stand now June 12. Was told that sometimes they cannot see everything with a C-scan. I am hoping & praying that I am in remission. I could not have the whipple. The tumor is where the common bile duct & pancreatic duct enter the duodenum & involves the duodenum also.
Am trying not to dwell on this anymore than I can help & have a very positive attitude. The pain that I am experiencing usually happens soon after I eat "anything". Can't help but find myself wondering what will happen next & when. I really think this is normal. I have had 2 temporary stents placed in the ducts that really helped but was told they couldn't stay there all the time & each one has been removed. This is when the pain really started back. Do any of you know if it is possible to put a metal stent in that could be left there so the digestive juices could flow freely & possibly relieve me of some of this pain?
This is the first time I have posted anywhere & would appreciate any feedback any of you could give me. If you have questions that would help you in helping me I will be glad to answer them.
I am sorry for any of you that are going through this & for your family & caregivers too. The hardest thing for me to do was to tell my family & to see the hurt in their eyes now. I have a wonderful, loving husband that really looks after me & my every need, even some I haven't even thought about. I know the Lord has blessed me with him. I really feel sorry for anyone with this cancer or any of the others that do not have the love & support that I am receiving from my husband, my son, grandchildren, extended family & close friends. It helps more than anything in this world except for my love of God & the love I know he has for me. Thank heavens I am not afraid at all. It is really strange almost the calmness & peace that I feel. It even amazes everyone including my Pastor, the doctors, etc.
Thank you for any comments that you think might help me. So glad I found this website today. This cancer is so rare it is hard to find a lot about it.
Take care & have a wonderful week.