Yes it is true, I had chemo. But to answer your question about statistics, I have yet to find any that suggest that chemo is indicated or helpful if you have clean margins and no lymph nodes. I opted to do it because my doctor suggested it as a precaution and my family supported me doing it. It was no piece of cake, let me tell you, however, I have no regrets about it. If it helped, great, if it didn't, well ok it's over.
It is so easy to look back and think about what we should have done in situations. Unfortunately, we cannot change the past and have to move forward and live. Cancer comes with worry, regardless of what we do. While the cancer is never far from my mind, time has been a great healer and I don't dwell on it as much as I did. I suppose it is easy for me to say since I've been so lucky.
Keeping busy, living life, staying on this board to help (and get support), and trying not to dwell are my solutions to cancer worry.
Oh and my CA19-9 was never high, even when I had CC, so it is not a valuable test for me and my doc has decided that blood tests just aren't worth it anymore. This new onc is a minimalist. He suggests staying in touch with your body, seeking help if something feels wrong and living life without the ongoing reminders of cancer (tests, scans). He also does a ton of research and is very familiar with the course of CC.
Sorry for the long post. In a nutshell, we all do what we can with the information we have at the time. Try not to live with daily regret and fear (I know, easier said than done).
Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).
My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.