Topic: Roller Coaster Ride - No kidding
I read so many posts about this being a roller coaster ride and I had no idea. We had out first chemo on Friday - Gemcitabine and oxaliplatin (thought it was Cis but not). Things went awesome....no nausea, no fatigue, just some of the cold sensitivity from the ox and some horrific night sweats. I even felt happy enough that I went back to work and let him take our son to deal with the surgeon (he had a thyroidectomy and radical neck dissection for thyroid ca and then abscessed needing I and D of the wound). Things went really well, I got a full day in which was only my 5th day of work since May.
Got home and Mark was parked on the couch complaining of not feeling well. Took his temp and it was 102.7. So back in the car for the 2 hour drive to Seattle and 5 hours in the ER and they decided to admit him. I am beginning to see infection/elevated temp as probably the biggest part of our roller coaster.
Then I had to get really mean last night. They took us to the floor and were getting ready to put us in a semi-private room and the guy in the other part of the room was coughing and hacking and sounded like he was really sick. I said NO WAY. I put my foot down and insisted that they find a private room. I am tired of putting my husband who is already fighting some sort of infection in a room with some one who has who knows what. Took a bit of arguing and them telling me there were NO private rooms and me threatening to take him home and the night shift Resident Doc got involved and backed me up. Suffice to say we are in a private room now. Amazing that the floor we are on has a bunch open.
Still waiting to find out if he was septic this time again. White count was normal and so was all his liver functions so I am less worried now. But they are talking about taking out the chemo port as a possible source that will bum me as it will mean another surgery at some time to put another one in.