Aug 11, 2013
I am now 65 and in "excellent" health (besides ICC). I hope this info gives you and perhaps others some bit of hope.
Diagnosed 11/09. (Caught it before it spread beyond the liver.)
60% of liver resected, clean margins. (Dr. Rohan Jeyarajeh, Dallas, TX)
Gem/Cis preventatively. (Dr. Vikas Aurora, Grapevine, TX)
8 months remission.
Reoccurrence to a local lymph node.
Gem/Cis again (Dr. Vikas Aurora, Grapevine, TX)
Removed the rest by surgery. (Dr. Jeffrey E. Lee, MD Anderson)
1.5 years remission.
Reoccurrence to a slightly more distant lymph node.
Taking (oral) Xeloda now. (Dr. Vikas Aurora, Grapevine, TX)
CT next week (mid Aug 2013) after 3 cycles.
Side effects never a big deal to me but I did get/use a dietician specializing in cancer care to give me more tips on preventing side effects) Recommend.
Cancer hormones can cause depression not to mention the fear of the diagnosis. So make sure either of you don't become trapped in anxiety, depression, or fear of making a decision. If so, seek help (e.g. meds, stress mgmt education, mind/balance steps, no secrets. I even have an upbeat personal trainer come to the home to keep my core strong, energized, good circulation, big smiles)
I'm impressed with your medical saavy and research. Your wife is lucky to have you in her corner. My husband (former pharmacist then lawyer) was/is great at that too. If you ever need/want to talk to someone who can talk to you on that level, feel free to call 214*734*5023. I haven't posted much here so I don't know if I'll know if you reply on here. Going to Seattle vacation this week... That's my cell.
Ask me about my doctors!!