Topic: Worried in Wisconsin
Hi. My name is Jean and I was recently diagnosed with cc. The doctors told me I had a small hemangioma on my liver 2 years ago and there was nothing to worry about.....many people have them. A few months ago, I noticed a sight discomfort under my right rib cage. I went back to my local doctor and was told that the hemangioma had grown from 3 cm to 8 cm. They gave me 3 CT exams, an ultrasound and did not want to do a biopsy because hemangiomas are clusters of blood and they were afraid it would burst. They wanted me to have an MRI. I am very clostrophobic so I took my test results from the local hospital and went to the university hospital in Wisconsin, where I saw a liver specialist. He viewed my scans and said he would be "very surprised if it was cancer" and even thought I had some sort of parasite from Mexico.....that test came back negative, so he scheduled a CT. During the CT, the tech told me she sees cancer all day every day and that this was not cancer. I was relieved. Two weeks later I got a call that they wanted to biopsy the mass. Ok, no big deal, right? Even the biopsy doctor stated outright that he did not feel it was cancer. Well a week or so later I got the news....cancer. They told me over the phone that the mass was so huge they did not feel surgery was an option....possibly a liver transplant. I was devastated. I am 43, non smoker, occasional drinker with small kids at home and NO family history of any type of cancer!
A couple days later the lead surgeon from the transplant team at university hospital called me to tell me the team had reviewed my file and I was indeed a candidate for the surgery, which was scheduled for 3 days later. After 4 hours under the knife, the pathology report came back that the cancer was contained to the liver, with no lymphatic involvement, no vascular tissue involvement, nothing. The tumor was completely removed with a 1 cm border around it as well as 70% of my liver, which I am told should be regenerated by now (5 weeks later). I am supposed to feel "lucky" as I do not have to have chemo or radiation, just come back every 3 months for CT exams for follow up....however, I am terrified. I know nothing about this cancer or any other for that matter. I find myself very depressed and constantly wondering ....did they really get it all....how long do I have...will it come back.....etc.
In reading some of the other stories posted here , I do realize that things could be worse, but I am really scared. Has anyone else had this type of news?......