Topic: Faces of Cholangiocarcinoma

A few years back I located a site titled "faces of cholangiocarcinoma" and now I can't locate it. Has anyone seen anything like that? I thought it was affiliated with this site, but I guess not. Just let me know. Thank you!

Re: Faces of Cholangiocarcinoma

You are correct. We did have a page like that but as we began to grow rather quickly Rick could not keep up with it and do all the many things we need him to do on our Site BUT I have heard through the grapevine  there is something that is in the works and when Rick gets some time I understand it will be well worth the wait. In the meantime some of us have been posting a small picture on our Avatar which you will find in your profile.
Click on Avatar, go to your picture files, select a picture then right click on it and  choose to open with Paint. You will need to RESIZE  in Paint, choose Pixel and it can be no larger than 60 X 60. SAVE
Go back to your Avatar and where it says Browse it should come up and will post to your Profile. Good luck on that. How have you been doing, Mowissa?
Good to see your smiling face again.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Faces of Cholangiocarcinoma

In a few months, we will have a clearer picture as to whether the faces of cholangiocarcinoma can be integrated into the new website.  All of us loved it however; it was very time consuming and we had lacked the manpower to keep up with it all.  This may change with the newer design as additions and changes are easier to implement.  Hopefully we will have it back.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Faces of Cholangiocarcinoma

Looking forward very much to seeing the new site!! smile

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Faces of Cholangiocarcinoma

Me too!!  Very exiciting.

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Faces of Cholangiocarcinoma

I'd love to see the Faces of Cholangiocarcinoma page back.

"Time may be a great healer, but it's a lousy beautician."

Re: Faces of Cholangiocarcinoma

Speaking of seeing faces, dear Julia, so good to see yours! I hope you are doing quite well! It is always a treat for us to see you again!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Faces of Cholangiocarcinoma

I am very excited to see the new website! When I was first diagnosed I googled Cholangiocarcinoma and this website came up. I started moving through the website and clicked on the faces of CC and it was devastating to see that so many lives were lost. I thought I was going to see the people surviving from this disease. Maybe there could be two links one as a memorial page and then another for the faces of CC could be those still here with their story.
Just an idea.
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Faces of Cholangiocarcinoma

Good point, Lisa.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Faces of Cholangiocarcinoma

I agree Lisa.  When I was first diagnosed I went through the faces of CC looking for survivors and was actually driving myself crazy.  I would see someone on there and then go to FaceBook to see if they were there and alive or google their name.  It's such a fine line between realism and hope.  I actually found very few people alive and it was quite depressing for me.

I like the idea of a memorial page separate from the faces of CC, however, who will maintain that when someone loses their fight?

It's all so complicated isn't it.  I am curious as to what others think.

Just my two cents
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Faces of Cholangiocarcinoma

Correct.  This is one of the issues we are mulling over - the affect it has on those fighting this disease.  But the discussion board is to be run by the members hence, all comments are welcome and ultimately will be implemented. 
Some people shy away from this site due to the negative impact it has.   How do we find the perfect answer?
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Faces of Cholangiocarcinoma

The answer for me was very clear. As you all know, I was Teddy's Care Taker and advocate and I could have NEVER gotten through those 5 years without this sight and you Marion and Jeff G. My goodness who had ever heard of such a Cancer and I am going back 8 years ago when a lot of Doctors had never heard of it. No, this site is not for the weak of heart, but I know so many people have been helped and lives prolonged with all the sage advise. I do think Randi has a great idea to have a page In Memory and a page for our warriors. It would be a lot of work with constant updating. Want to remind all that the Avatar picture works well for now and it really is easy to use. If I did it you all can post a picture too. I really am computer illiterate. Also it is all your ideas that make this Site so outstanding. You may not know this but we are being talked about all over the world!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Faces of Cholangiocarcinoma

Thanks, Lainy.  Personally, I like the idea of placing a picture in the Avatar. I anticipate our site to be expanding globally and for that reason alone it would make sense to stick with the best available option - Avatar.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Faces of Cholangiocarcinoma

So, dear Marion...this begs the question...Where is your Avatar?

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Faces of Cholangiocarcinoma

Ha, Ha good one, Randi, girl. Should we play a game here? Only rule is that you cannot have met Marion before. Those that want to can describe in a post what they think Marion looks like! I did this in my head with Randi and Clare and I was just about right on! Since I have had the pleasure of meeting Marion, I will bow out. I hope its OK if we have a little fun at your expense, Marion. All done with love and a little diversion.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Faces of Cholangiocarcinoma

I saw she is a tall, leggy, blonde with a million dollar smile smile

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Faces of Cholangiocarcinoma

I'm not talking while the flavor lasts. We will see if we get anymore responses. I don't know why we get in trouble together!!!!!!!! I won't say if she is leggy or not BUT I know she could use about another 5 pair for the way she runs around for CC.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Faces of Cholangiocarcinoma

Ha, ha...thanks.  Now, how did we end up with this conversation?  Although, my picture is displayed as one of the CCF board members, I am ready to change it, as it was taken 6 years ago.  I just have this issue with displaying it on the Avatar - not sure a valid reason - but somehow I prefer to stay somewhat incognito. 
I like the option of either displaying the picture or not - it is personal - but have to admit that it is nice to have a visual connection too.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Faces of Cholangiocarcinoma

Never met Marion but I've seen a couple of photos so I'll bow out of this one I think!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Faces of Cholangiocarcinoma

I have not been able to download an avatar. I certainly can't do it through my I-Phone. Wish it were more user friendly. I would love to share my beautiful grandmother's picture with all.

In loving memory of my beloved and cherished grandmother who fought until the very end. Loving you forever abuelita...

Re: Faces of Cholangiocarcinoma

Can someone help elsyr with placing her picture on this site, please? 
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Faces of Cholangiocarcinoma

OK, after reading this I decided to give it a try. After several attempts and a lot of frustration I finally got my picture to appear.  Unfortunately I'm not sure how to explain it.  I followed Lainy's instructions, but was getting error messages.  Just kept trying different things and all of a sudden, there it was.  Not the best pix, but it will do for now.  smile

Elsy, hope you can get it figured out, too.  Good luck!

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Faces of Cholangiocarcinoma

I have had troubles too. I keep working at it until I get frustrated then stop for awhile....I am sure it will work after awhile.

I would really like to see the faces of those who are surviving this terrible disease.....it gives hope to see the faces and how long they have lived with it.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: Faces of Cholangiocarcinoma

I've met Marion, too, so I can't do a description, either. I WILL tell you that she is short....er than me!! But then I'm 6'1"!
I wish I could remember how I got my avatar to post, as I wouldn't mind changing mine, either.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Faces of Cholangiocarcinoma

WooHoo! I finally got an avatar loaded. Picture of my husband.....he probably will hate it if he ever sees it but I don't care. It's one of his looks that I seem to get when I am off on some tangent he doesn't get.....happens a lot. smile This was one was just before he got sick and lost so much weight. Just had to be persistent.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.