Topic: my dad has CC i have depression

hi
my name is amir from Iran. i am not very good at english so please excuse me for mistakes.
7 months ago my dad diagnosed with CC (klatskin tumor). it was so terrible for us because the dr said that it has no treatment and your father will live maximum of one year. we were not disappointed and found a dr who accept to do a surgery to remove the tumor. we spent a lot of money and unfortunately the surgery was not successful the dr. said it is stage 4 and the tumor can not be removed. so we started chemotherapy and now he had 6 session of injection of Gemzar and cisplatin and he has a drainage and he is better now.
i had depression for years and now i am in the worst period of my life. the medicines hardly be found here and they are so expensive. i work for an airlines and i earn about 400 dollars a month so we are in a very bad situation.
the dr said we can only help him live a little longer. is my dad really dying?! sad(

i came here because i really need energy and sympathy. please help me.i smile always in front of my dad and my family and say he is gonna be ok soon. they have no idea that there is no hope. it is very much for me i already have depression sad please help me...

Re: my dad has CC i have depression

Amir.... A warm welcome to you.  The diagnoses with this disease is known to trigger a wide range of emotions hence, I much understand your feelings well. Amir, no one can predict the true life experience of someone stage IV with this disease.  Your Dad has his cancer, it presents at his stage and his response to treatment will be dictated by his body alone.  In no way do I want to make light of the situation but, I also want to give you a little bit of hope and help you help yourself.
Amir, I don't know how things work in your country but I was wondering whether other treatments such as interventional radiation has been ruled out? 
You will not be lacking emotional support on this site.  Collectively you have a tidal wave of love, understanding, caring and commitment heading your way.  I am sure for others to be around real soon.
Please stay in touch.  We care and we are in this together.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: my dad has CC i have depression

Dear Amir, welcome to our wonderful family but sorry you had to find us. By the way your English is fine! I am so sorry about your Dad. I guess my biggest question is can you get another opinion? IT ALSO SOUNDS LIKE THE CHEMO MAY BE WORKING. I am also suggesting you get in touch with your own Doctor to see if you can get something to help you get through this. CC is the biggest roller coaster ride one can be on and a lot of people need a little help in getting through it even Care Takers and close family. You have come to the right place for support so don't be afraid to use us. Most important is try to be very strong.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

4 (edited by PCL1029 Tue, 06 Aug 2013 20:11:39)

Re: my dad has CC i have depression

Hi, Amir,
I am sorry for the situation you are in now; you are a good son for your family and the prince in your father's eyes.
A couple years ago, on this web site,  I met a young woman(whose name means "eyelashes") from Iran who came on this message board,like you, and asked for opinions to help her mom who had the same type of cholangiocarcinoma.
If I remembered correctly in the exchanging of e mails, I told her" To change the things that she can and accept the things that she cannot change".
Amir, I am only a patient and one of the moderator on this board.As a patient, I know first hand how your father is feeling right now, both physically and mentally,but as a father of four myself, I am not worrying about my illness as much as the future and happiness of my children; and I am sure your father will be thinking the same about you and your brothers and sisters . Base on your message above, I know you have tried your best in taking care of your father,the same way as a commander taking care of his troops in the battle field, and therefore you should be proud of yourself in caring of your father to such a great extend without any regrets.
Please take care of yourself ,in doing so, your father will be proud of you knowing that his son will be healthy and fit in the years to come.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: my dad has CC i have depression

Hi Amir,

Welcome to the site. Sorry that you had to find us all here and I am sorry to hear what both you and your dad are going through right now, but I am happy that you have joined in with us all as you are certainly in the right place for support and help and I so know that you'll get a load of both from everyone here. I came here when my dad was diagnosed and got so much support from everyone and you will also get the same. And, having been my dads carer during his fight with CC I so know how you are feeling right now.

You are doing everything that you can to help your dad right now and I know how much that will mean to him. You are a good son Amir. But you must take care of yourself as well. Learn as much as possible as you can about this disease  as the better informed you are the better you will be able to help your dad. If you have any questions then ask and we'll do our best to answer them.

Is your dad due to have any more chemo sessions? It sounds like the Gem/Cis is working well and I assume that he handled it well? Please keep coming back here Amir and let us know how everything goes for you and your dad. We know what you are going through and we care.

My best wishes to you and your dad,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: my dad has CC i have depression

hi

i appreciate so much
thank you all for your support

dear Marion
is interventional radiation necessary now? because the CT shows that the chemo works and the Dr. decided to continue chemotherapy for more 6 sessions
can we use the interventional radiation too?

Dear Lainy
thank you smile
you are right the chemo is working well but Dr said it only can help your father live a little longer.
is it possible to do a surgery after chemotherapy?

Dear  PCL1029
i think her name was mozhgan (eyelashes)
the problem is my father do worry about us and especially me. because he saved money for years to spend for my marriage and now he spent all for his treatments and as he says a lot he really want to see me marry but it is so difficult in this situation as i said my salary is about 400$ to understand how low it is i should say a 50 m^2 house cost more than 70000$ in our country and the worst car that you will never seen is about 5000$.

Dear Gavin
yes my dad is having 6 more sessions and you are right it is working well and my dad handled it well but my question is how it is working? is it a treatment that remove tumor or is it just help him live longer?


again i thank you all and i don't know how to thank you i am so happy to find here and i have the best wishes for you all.

Re: my dad has CC i have depression

Amir,

So sorry for your situation.  I am stage 4 intrahepatic cc and have a 14 month old son that I worry about leaving so I understand the depression.  But i also have a lot of faith and none of us are promised tomorrow even if we're healthy.  It is good that he is responding to the treatment.  From what I understand if you keep responding well to treatment and take good care of your body so that the chemo doesn't wear you down then you can live a lot of years with this.  Take care and try and stay positive.  You and your family are I my prayers.

Danna

Re: my dad has CC i have depression

Hi,Amir,

As a father myself, of course, I like to see my son get marry and carry the family name on for generations to come. I am an old fashion guy when comes to traditions but I am also try to keep me up to date on the knowledge of finding a better treatment for this disease.
I am a Christian by faith, sometimes we have to accept whatever God decides ; we can use God given wisdom and guidance to try our best  ,to care of our family and make our future  brighter even in the mist of disappointment.
That is why I told Ms.beautiful " eyelashes"  and you " TO CHANGE THE THINGS YOU CAN AND ACCEPT THE THINGS THAT YOU CANNOT CHANGE".
As long as the chemotherapy works and your father can tolerate the chemotherapy,that will be fine. Surgery depends on whether the tumor can be shrunk enough to do the procedure and the current health status of your dad. As long as the chemotherapy works, I do not think you need to get interventional radiology treatment at the SAME time but it will be a very wise choice down the road if chemotherapy stop working. 2nd opinion on interventional radiology is recommended if chemotherapy failed . ( ie:University affiliated hospitals in Iran) In the meantime, be strong , and enjoy the family time with your dad and the whole family. It may not be a bad idea if you can see your family doctor or go to the drug store and ask the local pharmacist to recommend an anti-depressant for you if the pharmacist are allowed to do so. It will help you to be more at ease to deal with the emotional of ups and downs of taking care of your father.
Again,seek help for yourself  and be healthy . I think your father will agree with me on this too.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: my dad has CC i have depression

thank you pcl

also i want to say that the Iranian are good people and seeking peace we don't like our government and now it is hard to find medicine because of boycotts

please do something sad

Re: my dad has CC i have depression

Amir......the disease of Cholangiocarcinoma crosses all political and geographical borders.  We are one people touched by a cancer little understood; we need to work together.  The current regimen of gem/cis is the considered standard of treatment hence, your dear father most likely would receive it wherever he is.  Who is helping you, dear Amir?  Are you seeing a physician for your ailment?
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: my dad has CC i have depression

dear marion...thank you.. i have been seeing a psychiatrist for 10 years and i used so many drugs and now i use flouxtein and perphenazine and cholordiazpoxide and inderal every day but i am not ok yet... it"s killing me that the depression is still with me... unfortunately life events make me feel worse... i'm confused i don't know what to do to feel better...


i am so sorry i know i'm nagging a lot...

thanks danna and PCL

Re: my dad has CC i have depression

my dad is fine and being treated by chemotherapy and 4 sessions remain to complete the chemotherapy and i don't know what should we do next?!

Re: my dad has CC i have depression

Hi, Amir,
glad to know your dad is fine.
I will wait until the completion of the chemotherapy and let see what the doctor will decide before getting worry.

I agree Iranian people, like the American people, are of good nature and friendly; somehow the politics  of the world get into the middle of our good human nature and act otherwise.

I hope one day I can meet you and the beautiful"eyelashes" together  in Iran and have a glass of Coke-Cola,singing their famous commercial song of "I like to sing to the world of the perfect harmony...."
Good luck and
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: my dad has CC i have depression

Nicely stated, dear Percy.  Please keep us posted Amir.  You have a million good wishes heading your way.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: my dad has CC i have depression

Dear Amir, I am so happy to hear your Dad is doing so well and thank you for updating us on your DAD'S progress. Our CC board is one small place in this big World of ours where nothing else matters except for our CC family. We do not look at what Country anyone is from or what religion they are or what politics they believe in. We only see Human Beings.  Here is only caring, courage and love for each other no matter what. I often say if our Board ran the World would it not be lovely? Please keep us updated on Dad's progress. And you take care of yourself!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: my dad has CC i have depression

Hi Amir,

Great to hear from you again! And that is brilliant news that your dad is doing fine with his chemo sessions and I hope that the last 4 sessions go well for him too. I assume that he will be getting another CT after his chemo is over and I'm with Percy on waiting to see what that shows before thinking about what comes next etc. Hopefully that will reveal some very good news indeed for your dad and please as always let us know how that goes.

Ditto as well to what the others have said about politics and all of that. Here we are interested in people, all people no matter what. And I hope as well that the fluoxetine works for you too Amir. That takes time to work does it not? You have so much to deal with Amir but please remember that we are all here for you/

My best wishes to you and your dad,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: my dad has CC i have depression

Prayers for you and your family, Amir! Our parents are so important to us and no matter how old we or they are, we never stop needing them!

Blessings!

Gigi

Re: my dad has CC i have depression

hi

thank you all

finally chemo therapy sessions are done and now after 1 month my dad is fine and also he gains weight.

Re: my dad has CC i have depression

Dear Amir, what wonderful news! I am so glad you shared that with us. And how are you feeling now? We appreciate the update and please do keep us posted on your Dad's progress.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: my dad has CC i have depression

Dear Lainy, i am so happy also my mom and whole my family.

my dad goes hiking every day and he is so good these days. we are hopeful now and it is also so good to see my dad hopeful and strong.

now he started to advise me to get married etc. and of course i don't like it but it feels so good that he returned to his normal life.

Re: my dad has CC i have depression

Hi


i want some information about stents. my fathers stent has a problem. he had a fever three days ago and around the stent in his stomach the yellow water started to leak. he takes cotrimoxazole and now he is better but leaking still a problem and his face started being yellowish.

i am so sad. is metal stent better than plastic one?
is this mean that the tumor growing up?

please help

Re: my dad has CC i have depression

Dear Amir, I already answered  your email so hand in and be strong and please let us know what happens in ER.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: my dad has CC i have depression

Amir.....the stent will need to be replaced (if plastic) and cleaned out (if metal.)  Often times additional stents will be placed.  Sludge that builds up in the stents does not necessarily contain tumor cells.  The physician should be able to explain this to you.  As Lainy has mentioned please keep us informed.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER