Topic: New chemo regime and update on my husband
Well we just got home yesterday, 8/30. We headed to Houston with then idea Gordon would have surgery on 8/20 and when that changed the plan of next steps had to change.
So we had appts with Dr Javle and dr. Vauthey the same week of the 20th. Good news is Dr. Vauthey said he is not giving up we are going to reelavuate after the round of chemo. I may be repeatin somethings, give me a little grace it has been a long two weeks.
So Dr Vauthey got on the phone with Javle in the middle of our appt and decided that gordon needed to get the stents out and get the drain that comes out of the skin, to avoid anymore infections and Javle was very concerned about these infections as well. I think everyone knows how dangerous these infections can be for cc patients.
So we went home over the weekend picked up our kids brought them back for the week of removing the stents and putting the drain in, also a picc line.
We he got the stents out on Monday, couldnt get him in to get the other drain in until Wednesday morning, Gordon started feeling bad on Tuesday ran a 101 fever and they loaded him up with antibiotics and postponed the the surgery for a couple of hours. They caught the infection in time. I dodn't know if he would be in ICU when he got out and the doctor warned us and to prepare for Gordon to be in the hospital for a couple of days. But everything went fine, he didn't have a fever after they finished, we love love love the people at MDA!!! They took good care of both of us!!
I had one meltdown in the cafeteria and one in front of the nurse in the room. I thought I was getting sick but I had been so busy running around getting his scrips and learning how to care for the picc and his drain, I had to take classes and a test!!! did great by the way!! but i was just exhuasted and emotional, its amazing what a hug will do
He got discharged Friday and we headed the 3 hour trip home, Gordon was in so much pain because of the rough road but as soon as he got home he has been doing great!! Okay some questions...
Here is the chemo regimin that Gordon will start on Wednesday...
Cetuximab(erbitux);5 fluorouracil and Leuconvorin;Irinotecan(camptosar) he will have a pump at home and I think this is a 2 month regimin.
Also Gordon has referred pain in his shoulder anyone else had that?? and do you guys ever keep something extra strong like Morphine if you are the patient has breakthrough pain??
okay all for now!!