I understand if you or someone in your family has a bad experience somewhere, you might be reluctant to go there. I am very sorry to hear about your husband's ordeal and the death of your dear nephew. I can only say that our experiences with U of M were all good and that they did everything in their power to help Lauren. It is very difficult losing a child. We think about her all the time and wish so much we could see her again. I hope that in time it gets easier because how we feel now is not easy to deal with. I do have people to lean on. My husband is a gem and I have two wonderful children and a son-in-law. I also have my Mom, Dad, and sister along with her family. My friends are great but I feel they would not want to be around a Debbie Downer, so I put on a happy face and pretend I am ok. I hope that you will find a place you are comfortable with and get great care. Best wishes.
Love and hugs,
My beautiful daughter, Lauren Patrice, will live on in my heart forever.
My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.