Topic: chemoembolization vs radioembolization

Wondering who here PERSONALLY has had either and how it went?

Looking for REAL LIFE thoughts and experiences (as opposed to links
and medical data which I can never understand anyway) please.

After Kyle finishes 2 more weeks of Gem/Cis (total now of 16 chemo
treatments--not cycles.  He will have had 18 total chemo days of
gem/cis when he's done) 

With ZERO 'bad' side effects other than tired.  No numbness,
sensitivity to cold, nada.  he feels pretty darn lucky.

They want him to meet with a radiologist and discuss the above
two options.  I have read LOTS online about pros/cons...but would
LOVE to hear PERSONAL stories of those who have done it.

Real life examples.

I am nervous to venture into the unknown when what we're
doing is working quite well.  We would like as much GOOD time
as possible...so far that's what we're getting.

As a refresher kyle was diagnosed in March of this yr.
Stage 4, one main liver tumor with 2 or 3 regional lymph nodes
involved and 2 teeny spots in lungs.  But yup, still stage 4 metastatic
cancer.  never a great thing.  but fight we will for as long as we can.

Anyone that can share their story here? 
Please and Thank you!

Dorien

Re: chemoembolization vs radioembolization

Hey Dorien,
I can tell you a little bit.  My Doctor and  I chose to do chemo embolization  because of my circumstances.  Everyone is different. I've never been officially staged but my guess is stage 4 since I have a tumor in my liver plus satellites in there, some lymph node involvement and bone mets. I was diagnosed 1/12. I did a drug study for unknown primary to start, then after CC diagnosis switched to Gem/Cis.
I have been on a chemo break for about 2 months.
I have one larger tumor in the left lobe of the liver and it is really high in the dome which is very difficult to access so that was part of the reason for the chemo embo.
I had it done about a week ago on 8/15. The procedure is very straight forward and I was aware of very little or just didn't care. They had a bit of trouble getting through my very small arteries but once they got through everything worked fine. I was in the hospital overnight....I had no nausea, some mild pains more related to my bone mets rather than the procedure. I was really tired for 2 days and pretty much just felt better lying down. As they said I felt minor flu like.  By Day 4 I could get up and around and after a week back to normal. I did get a hematoma at the insertion site but otherwise all is good.
I won't know until Sept 16 when I get my follow up MRI and CT scan how well it worked.
Hope this helps.
Cathy

Re: chemoembolization vs radioembolization

Thanks SO MUCH Cathy!!
yes--this is what I'm looking for!

some "real life" stories/experiences.

i realize that everyone is different...but would like to just
get some idea of what to expect in the treatment options.

Thanks again!!
Dorien

Re: chemoembolization vs radioembolization

no one else??? is this not a common procedure?

Re: chemoembolization vs radioembolization

Dorien if you go to our Search site above and type in what word/words you are looking for many posts will appear about your questions. I am also sure more Members will be posting but when I want a question answered quickly I usually go to the Search site. That's the best I can tell you on this one. Be Strong!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

6 (edited by marions Tue, 27 Aug 2013 20:11:58)

Re: chemoembolization vs radioembolization

Dorien...don't give up - reactivate this link every couple of days.  Also, the below leads you to numerous discussions (taken off the search engine):
http://www.cholangiocarcinoma.org/punbb … 1580498710
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: chemoembolization vs radioembolization

Thank you! smile

Re: chemoembolization vs radioembolization

Hi Dorien,

My Lauren had radioembolization in the form of Theraspheres. She had it on the side of her liver that had several small tumors. The actual procedure was not painful. She did develop a pain in her chest that lasted for weeks and the doctors attributed it to nerve pain. The spots showed up on future CT scans and the docs were not sure if it worked. Turns out when she had her first surgery, her surgeon said all the tumors on that side were dead, so it did work. It is difficult to tell in a CT though. Hope this helps some. Take care.

Hugs,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: chemoembolization vs radioembolization

Thanks Pam! smile

Every little bit of information helps right now!

Re: chemoembolization vs radioembolization

I had theraspheres in February two short weeks after a liver resection that took my left lobe but was only palliative as there were also small tumors on the right that were left in. The two weeks following the spheres were like the flu with fevers and tired and then all better. The surgery was the hard thing to recover from. But then in parts of April and May I had a series of recurring fevers and an overwhelming lethargy - - every time I stood up I felt I would shatter into pieces and end up in a pile of shards on the floor -- it was wierd. By the end of May that was all gone and my markers were all much lower (but never back to normal) My interventional radiaologist says the tumor necrosis factor caused the fevers and that the tumors were dying off. Sure enough by scans mid-July I had no visible evidence of any disease, no tumors, nothing. I have had an absolutely wonderful summer and have felt, other than tiredness, much better than I did when I was diagnosed in October 2012. I have not been on any chemo or anything since January because my platelets are shot. The bad news is that my markers doubled between July and August so I need to move on. I am getting new scans this week. So I believe that the combination of surgery to de-bulk the tumor load, followed immediately by the y-90, bought me six months of good times with my family, even with the fevers. So I am a fan. You can only do y-90 twice. I would not hesitate to have another go down the road with it. I hope this helps. email me if you have any other questions about my experience with y-90 radioembolization, and good luck!
Holly

Re: chemoembolization vs radioembolization

LET'S here it for HOLLY! I am so glad you are doing well and enjoying your summer. You go girl. This is how I like to go to bed at night and wake up in the morning...to good news.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.