Topic: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

Hi, everyone,

PET is in general a better method in detecting EARLIER metastases outside og the liver for CCA comparing to CT and MRI. (under cholangiocarcinmoma section in the link)

http://www.ajronline.org/doi/full/10.2214/AJR.11.6995

God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

Percy,
Thank you, my last PET scan was denied coverage and I have another scan coming up in September.
Hugs
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

Thanks Percy. Unfortunately, here in the States anyway, PET scans are not acceptable options for cc patients. My previous onc and I had to fight AETNA like crazy to get approval for ONE PET scan!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

4 (edited by PCL1029 Thu, 05 Sep 2013 08:45:59)

Re: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

Hi,Lisa and Kris,

I am sorry to hear that, I live in the States too, but may be our insurance are different. I have  no problem with the insurance company. Or may be it is not an uncommon practice around the oncologist group practice that I go to.

I got a CT scan and shown 2 lesions ,one with foci and the other not. Then the doctor ordered a PET to follow, within 7 days ,and discovered another soft issue foci developed in one of the lymph node nearby, (1.9x0.8cm);small enough to give me more option to decide on treatments. CCA is a "relative slow growth CA"
So your oncologist or health provider and health insurance may say no .

In my case, I verified above what the article stated and that is my intention .
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

Hi Kris, Percy and Lisa. Way back when...it seemed Teddy's Insurance denied every other PET and he was getting them every 6 months. Then when the ONC stepped up to bat for him they always said yes. BTW on one of his last PETS I was feeling they were NOT going to come through so started hunting around and found an Imaging Center that did PETS for about 1500.00. I can't believe that just 2 days ago I read where PETS are still the best for detecting Cancer but sorry can't remember where or when! AS ALWAYS 'LOVE' YOU ALL!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

Love to you all too!

Willow

Re: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

Love to you all too!

Willow

Re: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

Love to you all too!  I've believed the same all along about PET scans and wondered why they're not used regularly to monitor cancer activity (rapid uptake of glucose), not just measuring the tumor size as CT and MRI's do... especially when we've heard cases where there the tumor bulk is remaining but upon surgical inspection its found to be dead as a door-nail!
Insurance dictates the treatment/diagnostics  rather than "standard of care". Obviously, Most people don't have the resources to pay for regular scans out of pocket.
XO
Willow

Willow

Re: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

I made sure to print out pertinent information (such as the one Percy posted) and presented to the physician and forward to Insurance Company, if procedure was denied.  The problem with our disease is that Insurance companies are rigid with their adherence to the "very few" standards set by their Industry.  Obtaining one of their caseworkers at onset of diagnoses helps tremendously with all aspects of insurance claims. 
As we all know, in comparison to other cancers, we are a minute group hence, in order to make pertinent changes, we have to fight for everything not considered “standard” of care for Cholangiocarcinoma.   
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

Thanks for that Percy.

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Earlier Detection Value of PET Scan in CCA compare to CT and MRI

I have Aetna and they've always paid for my PET scans.  Maybe it depends on the type of coverage plan you have.

Mary