Welcome to the site. Sorry that you have had to find us all here and I am sorry also to hear what your boyfriend is going through. But I am glad that you've joined us all here as you are in the right place for support and help and I know you'll get loads of each from everyone here.
Like Clare, Lainy and Percy have said, I am from Dundee and my dad was diagnosed and treated here at Ninewells in 2008. He also received his scans, consultant meetings and other care from his GP locally here in Dundee as well. I find it strange to say the least that your boyfriend has only received one CT scan since his surgery last December. My dads scans were done every 3 months after he had his PDT. Like Clare says, scan results are not generally available for consultants to view immediately when a patient receives one as an outpatient and I am assuming that your boyfriends CT in June was done as an outpatient? In my dads case once again all of his scans following his PDT were done as an outpatient and he got the results once he saw his GI consultant a week or so later.
Personally I would have thought that your boyfriend should have had scans done every 3 months instead of 6, especially so immediately following his initial surgery or other treatment. A GP to the best of my knowledge would not pass comment on CT results to a patient and that would be the role of the consultant. As regards to the poor treatment that you seem to have received regarding information about everything from the GP and hospital team that is not acceptable and my dad never had to go through anything like that. I would suggest that you try and see a different GP and raise all of the points and questions that you have with him/her. How it works here in Dundee is that a patient is a member of the overall practice and is entitled to see and GP in that practice that they wish to see. All patients used to have an individual GP that was responsible for them, but that has changed now and pateints can insist on seeing any GP they like. Perhaps a different one will be of greater help and more forthcoming with information about everything.
Is the hospital that your boyfriend is being treated at a major hospital such as a teaching hospital, and do you know if the surgeon and medical team at that hospital have much experience in treating patients with CC? Smaller hospitals and teams in smaller hospitals may not be as experienced as those in larger hospitals and that is not just a Scottish issue, it happens all over due to the nature of CC.
My dad spent 7 weeks in an NHS hospital here in Dundee and during that time his full medical file was at the bottom of his bed for us to read at any time should we wished to do so. His GI consultant was also always there for us to answer any questions that we had alongside his other doctors as well. We had no problems getting detailed info about everything and to be honest, nothing was ever too much trouble for all of my dad medical team.
Please keep coming back here and keep us updated on how things go for you both, we are here for you.
My best wishes to you and your boyfriend,
Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.