Topic: University of Chicago

Hi!  I've never written in here before, but I wanted to let you know that I've been doing a clinical trial with Dr. Catenacci.  The trial has held the cancer at bay and it's all stable.  I thought you should know and give them a call because I believe they are working on other clinical trials too.  Dr. C is great and so smart! 

I take a protein inhibitor three days prior to getting the chemo - which is taxol.  I'm not crazy about the chemo, but it's working!

Here's hoping for a cure!

Re: University of Chicago

Hi jz1,

Happy to hear the clinical trial is working for you.  Can you give more details about your cancer?  When you were diagnosed, other treatments you had before the clinical trial, what stage is your cancer and is it intra or extrahepatic?

Thanks
Mary

Re: University of Chicago

Dear JZ a big welcome to our extraordinary family but sorry you had to find us. I am elated that the trial is working for you. Someone posted recently to tell us abou5t your Doctor C and they were raving about him also. Sorry, I can't remember who it was, but I am sure they will come back on.  Can you tell us a little more about yourself? What as your DX and when? We love the words like stable that is a very good thing. Please keep us updated on your progress and now that you posted don't be a stranger, we are a very special family!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: University of Chicago

Hi jz... Love the word stable!! I'm on an inhibitor also, but no chemo, and have been hearing that wonderful word for 6 months!!
Congratulations, and I'm with you in the hoping for a cure department.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: University of Chicago

Hi JZ,

Welcome to the site. Sorry that you had to find us all here but glad that you've joined in with us as you are so in the right place for support and help. And thanks so much for letting us know how your trial is going with Dr Catenacci at the U of C. That's great that it is going so well and my fingers are crossed for the good results to continue for you. Do you have a link to the actual trial that you are on so that others can read about it too?

Please keep coming back and keep us updated on how everything goes for you. We are here for you.

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: University of Chicago

Hi JZ,

welcome to the site that no one wants to have to join, but where you will find so much love and support.

Glad to hear your news of stability in your disease.  That is great and a word we love to hear on this site.  Also, loving your doctor is a huge plus!

Looking forward to hearing more about your situation so that others can chime in with their experiences relating to your situation (or others can benefit from hearing about you!).

Take care,
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: University of Chicago

I have intrahepatic (inoperable).  I was diagnosed 2 1/2 years ago - it started with a pain in my right femur bone, and I had to have a rod put in.  It's in my bones and small tumors in my lungs and of course my liver.  I so wish there was a cure. 

The trial I'm on is with Veronistat  and Taxol, so if you go to their cancer clinical website, you will find it there.

Thanks everyone!

Re: University of Chicago

Hi, everyone,
if interested, here is the link  and info for veronistat.( patient's version)

http://www.drugs.com/zolinza.html

God bless

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: University of Chicago

JZ,
You've been through a lot but are a source of hope, strength and inspiration to more than you know. Thanks for sharing the unique clinical trial you're on and a little about yourself. My sister has ICC as does my good friends' sister in LA (who is now also someone dear to me). I've been reaching out to both as they navigate this lonely road. Neither uses this board out of fear of coming across too much scary info or heartbreak but I really wish they would as its a wonderful source of info and support and hope.  Thanks again for posting wink

Willow

Re: University of Chicago

JZ....this, I believe, is the study your are enrolled in
http://clinicaltrials.gov/ct2/show/NCT0 … amp;rank=1
Good luck, dear JZ, and know that a tidal wave of good wishes is heading your way.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER